New Parkinson’s network seeking patients

Multi-site database will help move research forward

A new Parkinson’s network is inviting people living with the disease to help improve lives of patients and ultimately discover a cure.

The Canadian Open Parkinson’s Network (C-OPN) is bringing together many of Canada’s best in Parkinson’s research with eight sites initially taking part in four provinces, giving investigators access to unprecedented data. The C-OPN database and the biobank will support large scale, multidisciplinary projects that would not be possible at a single research site.

Dr. Edward Fon, scientific director of The Neuro, is co-director of C-OPN. The Quebec Parkinson Network, which Dr. Fon is also director of, will contribute its data to C-OPN.

Large-scale and multidisciplinary research projects are possible because through C-OPN because it offers multi-site recruitment and studies. C-OPN makes its databases open to investigators who request it.

C-OPN is asking patients to register to become part of this powerful new tool for Parkinson’s research. Patients who register will have the opportunity to:

  1. Participate in the creation of a national database collecting critical information from people with Parkinson’s disease or Parkinson Plus Syndrome for researchers across Canada.
  2. Participate in the creation of a national biobank for Parkinson’s disease or Parkinson Plus Syndrome for researchers.
  3. Learn more about research opportunities happening across Canada and contribute to findings and new outcomes that could change the future of Parkinson’s care and treatment or that can ultimately lead to a cure.

Currently, due to COVID-19, all research is being conducted remotely, and joining C-OPN registration can be done at home. If you are interested in participating, click the following link: https://app.copn.researchcalgary.ca/selfRegistration/en

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The Neuro is a McGill research and teaching institute; delivering high quality patient care, as part of the Neuroscience Mission of the McGill University Health Centre. We are proud to be a Killam Institution, supported by the Killam Trusts.

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