Lunch N’ Learn: How to Talk Research with Patient Partners
Your research includes and/or impacts patient populations, but you have limited experience in conversing with them?
The HBHL EDI Trainee Committee is hosting a virtual workshop for neuroscientists at all career stages looking to improve their communication skills with patients, caregivers and others with lived experience. The session, featuring insights from two medical librarians and a rare disease advocate, will introduce feasible, adaptable science communication techniques researchers can use when engaging with patient partners. It will also highlight ways to build lasting relationships that enhance research, such as patient advisory boards or invited talks at patient organizations.
A Zoom link will be provided to all registrants 24 hours prior to the event.
Speakers
Sabrina Burr
Sabrina Burr, MISt, is the librarian of the Neuro-Patient Resource Centre located at The Neuro (Montreal Neurological Institute-Hospital). She has eight years of experience as a librarian in patient resource centers at the McGill University Health Centre (MUHC). She is deeply committed to her work, particularly in empowering patients by providing them with information and tools to actively engage in their care and make informed decisions about their health and well-being. She obtained a certificate in Plain Language for Patient/Public Health Communication from the Michener Institute of Education at UHN. She also contributes to internal committees focused on enhancing the overall patient experience at the MUHC.
Paule Kelly-Rhéaume
Paule Kelly-Rhéaume is a medical librarian at the McGill University Health Centre. Working with both patients and medical students and staff, she has developed plain language expertise in medical information, holding a certificate in Plain Language from the Michener Institute in Toronto.
JoAnne Mosel
JoAnne Mosel, CPA, is a dedicated advocate in the Rare Disease space with over 30 years of experience. Her expertise in patient-oriented research and healthcare evidence ensures knowledge is accessible to patients and the public. JoAnne has worked with researchers across Canada, contributing to innovative projects, including one of the inaugural patient-driven research initiatives supported by the CIHR SPOR Evidence Alliance. Passionate about empowering patients, she continues to expand her skills through ongoing education and collaboration.
