About Research on Organization of Healthcare Services for Alzheimer's (ROSA)

Alzheimer's disease and related dementias are a major concern not only in Quebec but throughout the world. The World Health Organization recognizes Alzheimer's disease and related dementias as a global public health crisis of the 21st century. More than 55 million people worldwide are affected by Alzheimer’s disease and related dementias and there are approximately 10 million new cases every year. People affected by dementia often face difficulty in accessing assessment, treatment and care services which leads to a lack of support, stress and overload for patients and their caregivers. Unfortunately, healthcare services for these individuals are fragmented and inefficient, resulting in inappropriate use of services and increased healthcare costs. It is estimated that people living with dementia use emergency hospital services twice as often as people living without dementia.

Several organizations have recommended that the prevention, promotion, detection, diagnosis, treatment and care of people living with dementia should be the responsibility of primary care providers. Four Canadian consensus conferences, numerous provincial plans (including Quebec), and the Canadian Academy of Health Sciences have concurred that this responsibility should be anchored in front-line interdisciplinary clinics (e.g., family medicine groups in Quebec) with the support of specialized professionals.

Several provincial policies and local innovations have implemented these recommendations (e.g., the Quebec Alzheimer's Plan or the ministerial plan on TNCM). The adoption, feasibility and usefulness of these plans has been demonstrated, both for clinicians and people living with dementia, but no systematic evaluation has been carried out.

Our Mission:

To produce and transfer knowledge about the organization of services for people living with dementia, in partnership with patients, caregivers, organizations, clinicians, and researchers, with the aim of improving the quality of care for people living with dementia and their caregivers.

Our Objectives:

  • Increase the knowledge and ability to care for people living with dementia, particularly in the primary care setting.
  • Improve access, quality and continuity of care for people living with dementia.
  • Facilitate collaboration between primary care clinicians and dementia specialists.

Our Methods:

  • Participatory approach including various stakeholders throughout the research process.
  • Mixed convergent or sequential design.
  • Evaluative research.
Back to top