Collaborators

Myra Bluebond-Langner (anthropology)

Professor Myra Bluebond-Langner is the True Colours Chair in Palliative Care for Children and Young People at the University College London, Institute of Child Health and Great Ormond Street Hospital. This is a first Professor or Chair in Paediatric Palliative Care in the UK. She is also an Honorary Fellow in Royal College of Paediatrics and Child Health and Board of Governors’ Professor of Anthropology and founder and former director of the Rutgers University Center for Children and Childhood Studies, as well as an Honorary faculty at the Louis Dundas Centre for Children’s Palliative Care at Great Ormond Street Hospital.
She is a distinguished anthropologist whose early work on leukaemic children is regarded as marking an important change in children’s understanding of illness and death as well as the way children should be studied and regarded by researchers. Her recent studies of decision-making for children with cancer when standard therapy broke new ground in approaches to the study of decision-making and the involvement of children in decision-making and research. Author of numerous articles in journals and edited collections; she is perhaps best known for her books: The Private Worlds of Dying Children (Princeton University Press, 1978), In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child (Princeton University Press, 1996).
Her research has been supported by American Cancer Society, American Council of Learned Societies, Baker-Nord Center for the Humanities, Department of Health (England), The Health Foundation (England), Johnson&Johnson Family of Companies, The Schumann Fund for NJ, National Endowment for the Humanities, National Science Foundation, Verizon Corporation, as well as the Annie E. Casey, Geraldine Dodge, Olivia Hodson, Howard, Stanley Thomas Johnson, John S. and James L. Knight, Kurr, William Penn, and Fannie E. Rippel Foundations.
Myra Bluebond-Langner is the editor of the Rutgers University Press Book Series in Childhood Studies, the first multi-disciplinary book series in the field. She is associate editor of the British Medical Journal: Supportive and Palliative Care and also currently serves on the editorial boards of: Children and Society, Childhoods Today, Clinical Child Psychology and Psychiatry, ETHOS: Journal of the Society of Psychological Anthropology, and Omega: Journal of Death, Dying and Bereavement.

Patricia McKeever (disability studies, nursing, sociology)

Dr. Patricia McKeever is a Professor Emeritus at the Lawrence S. Bloomberg Faculty of Nursing, University of Toronto and Adjunct Scientist at Bloorview Research Institute, http://www.hollandbloorview.ca/research/index.php at Holland Bloorview Kids Rehabilitation Hospital. From 2007 to 2012, she was the inaugural holder of the hospital foundation’s Chair in Childhood Disability Studies. Dr. McKeever is cross-appointed to the University of Toronto’s Department of Paediatrics and Faculty of Music. Her areas of expertise include long-term care policies, chronic illness and disability, interdisciplinary scholarship, contemporary social theory and qualitative research methods. Her research focuses on disabled children’s embodiment, assistive technologies, and the places where they live, attend school and/or receive care.

Nico Trocmé (child welfare, social work)

Dr.Nico Trocmé, MSW, PhD, TS, is the Director of the School of Social Work and the Philip Fisher Chair in Social Work at McGill University. Dr. Trocmé is the principal investigator for the Canadian Incidence Study (CIS) of Reported Child Abuse and Neglect (1993, 1998, 2003 & 2008), the lead researcher for a Federal-Provincial-Territorial initiative to develop a common set of National Outcomes Measures in child welfare, directs the Canadian Child Welfare Research Portal (cwrp.ca), and is conducting a research capacity development and knowledge mobilization initiative involving child welfare and Aboriginal service provider agencies in Quebec. Recognized as one of the most prolific social work researchers in Canada, Dr. Trocmé is the author of over 130 scientific publications, has been awarded 25 million dollars in funding through grants, contracts and gifts, and has mentored a new generation of Canadian child welfare scholars. Dr. Trocmé has acted as a child welfare policy and program consultant to several provincial governments and Aboriginal organizations and has presented expert evidence at various inquests and tribunals. Prior to completing his PhD, Dr. Trocmé worked for five years as a child welfare and children's mental health social worker.

Daniel Weinstock (ethics, law, philosophy)

Professor Daniel Weinstock joined McGill’s Faculty of Law in August 2012. He was appointed director of the McGill Institute for Health and Social Policy in 2013, and named a James McGill Professorship in 2014. At the Université de Montréal, he held the Canadian Research Chair on Ethics and Political Philosophy and was also the director of the Research Centre on Ethics at Université de Montréal (CRÉUM) for many years. He is also a member of Centre d'études ethniques des universités montréalaises (Université de Montréal).Weinstock's research explores the governance of certain types of liberal democracies, and the effects of religious and cultural diversity from an ethical perspective on the political and ethical philosophy of public policy. He is a prize fellow of the Pierre Elliott Trudeau Foundation (2004), and a recipient of the André-Laurendeau Prize given by the Association canadienne-française pour l’avancement des sciences. He has published many articles on the ethics of nationalism, problems of justice and stability in multinational states, the foundations of international ethics, and the accommodation of cultural and moral diversity within liberal democratic societies. He has also been an active participant in public policy in Québec, having been a member from 1997 to 1999 of a Ministry of Education working group on religion in public schools, and from 2003 to 2008, the founding director of Quebec’s Public Health Ethics Committee.
Areas of interest: Social and political philosophy; ethics of public policy; ethics of nationalism; foundations of international ethics politics of language and identity; democracy, citizenship, and pluralism; justice in multinational states; accommodation of cultural and moral diversity in democratic societies.

Kathleen Glass (bioethics, law)

(In Memoriam: January 19, 1942 - April 12, 2014)
Dr. Glass was an active collaborator with the VOICE team when applications for major research funding were submitted in 2013. She participated in the development of VOICE’s general vision as well as specific operational priorities, as she was a longstanding leader in Canadian pediatric bioethics. We are therefore proud to remember her as an influential colleague and major inspiration for VOICE. Dr. Glass was an extraordinary ethicist, teacher, and researcher. She completed five university degrees: two in political science (i.e., B.A., M.A.) and three in law (i.e., LL.B., B.C.L., Doctor of Civil Laws). Dr. Glass was the Clinical Ethicist at the Montreal Children’s Hospital in 1992-93 and 1997-2010; Ethicist on the Montreal Children’s Hospital Research Ethics Board (1992-2010); and Full Professor in the Departments of Pediatrics and Human Genetics. She was Director of the McGill Biomedical Ethics Unit from 2000-2009; Principal Investigator of the McGill Clinical Trials Research Group; and served on the McGill Faculty of Medicine Research Ethics Committee (1991-2010). Dr. Glass was honored with the Lifetime Achievement Award of the Canadian Bioethics Society in 2011.

 

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