Selected publications that are related to childhood ethics, published by members of the VOICE team, are listed below. The names of previous and current members of the VOICE team are highlighted in bold characters. For a more complete listing of each researcher’s work, consult his/her respective website.
Principal overview paper on Childhood Ethics
- Carnevale F. A., Campbell, A., Collin-Vézina, D., & Macdonald, M. E. (2015) Interdisciplinary studies of childhood ethics: Developing a new field of inquiry. Children & Society. 29 (6): 511-523.DOI:10.1111/chso.12063
- Teachman, G. & Gibson, B. E. (2018). Integrating visual methods with dialogical interviews in research with youth who use augmentative and alternative communication. International Journal of Qualitative Methods. Advance online publication. http://journals.sagepub.com/doi/full/10.1177/1609406917750945
- Teachman, G.(2017). Optimizing interviews with disabled children and youth. In P. Liamputtong (Ed.), Handbook of Research Methods in Health Social Sciences. London, UK: Springer. Advance online publication: https://link.springer.com/referenceworkentry/10.1007/978-981-10-2779-6_124-1
- Teachman. G., McDonough, P., Macarthur, C., & Gibson, B. E. (2017). A critical dialogical methodology for conducting research with disabled youth who use augmentative and alternative communication. Qualitative Inquiry, 24(1), 35-44.
- Carnevale, F.A. (2014). Une perspective éthique sur le soutien aux familles d'enfants atteints de conditions chroniques complexes. In: M. Champagne, S. Mongeau, & L. Lussier, Le soutien aux familles d’enfants gravement malades: regards sur des pratiques novatrices. Montréal: Presses de l’Université du Québec, 197-212.
- Stephens, L., Ruddick, S., & McKeever, P. (2014). Disability and Deleuze: An Exploration of Becoming and Embodiment in Children's Everyday Environments. Body & Society. Published online 21 July 2014, DOI: 10.1177/1357034X14541155
- Teachman,G., Mistry, B., & Gibson, B. E. (2014). Doing Qualitative Research with People who have Communication Impairments. In SAGE Research Methods Cases [Online Repository]. London, United Kingdom: SAGE Publications, Ltd. http://methods.sagepub.com/case/doing-qualitative-research-with-people-who-have-communication-impairments
- Teachman, G., & Gibson, B. E. (2013). Children and youth with disabilities: Innovative methods for single qualitative interviews. Qualitative Health Research, 23(2), 264-274
- Hunt, M & Carnevale, F. A. (2012). Exploring disability through the lens of moral experience. Physical Therapy Reviews, 17(6), 369-373.
- Gibson, B. E., Carnevale, F. A., & King, G. (2012). "This is my way": Reimagining disability, in/dependence and interconnectedness of persons and assistive technologies. Disability and Rehabilitation, 34(22):1894-1899.
- Carnevale, F. A., Alexander, E., Davis, M., Rennick, J. E., & Troini, R. (2006). Daily living with distress and enrichment: The moral experience of families with ventilator assisted children at home. Pediatrics, 117(1), e48-60.
- Glass, K., & Carnevale, F. A. (2006). Decisional challenges for children requiring assisted ventilation at home. HEC Forum, 18, 207-221.
- Shariff, S., & Retter, C. (2012). Confronting cyberbullying: Defining the lines between ethical choices and jail terms. Cambridge: Cambridge University Press Legal Department.
- Shariff, S. (2009). Confronting cyberbullying: What schools need to know to control misconduct and avoid legal consequences. New York: Cambridge University Press.
- Shariff, S., & Churchill, A. (Eds.). (2009). Truths and myths of cyber-bullying: International perspectives on stakeholder responsibility and children’s safety. New York: Peter Lang.
- Shariff, S. (2008). Cyberbullying: Issues and solutions for the school, the classroom, and the home. Abington, Oxfordshire, UK: Routledge (Taylor & Frances Group).
- Shariff, S. (2006). Cyber-dilemmas: Balancing free expression and learning in the virtual school environment. International Journal of Learning, 12(4), 269-278.
Child health care
- Shilni J. Liberty & Franco A. Carnevale (2021). The recognition of children’s voices in health care and research within Nigerian child protection legislation: A normative analysis. International Journal of Africa Nursing Sciences, 14,
- Sebti,A., Buck, M., Sanzone, L., Liduke, B., Sanga, GM., and Carnevale, F.A. (2018) Child and youth participation in sexual health-related discussions, decisions, and actions in Njombe, Tanzania: A focused ethnography, Journal of Child Health Care, https://journals.sagepub.com/doi/full/10.1177/1367493518823920
- Montreuil,M., Carnevale, F. A. (2018).Participatory Hermeneutic Ethnography: A Methodological Framework for Health Ethics Research With Children.Qualitative Health Research.28(7), 1134-1144. http://journals.sagepub.com/doi/abs/10.1177/1049732318757489.
- Noiseux, J., Rich, H., Bouchard, N., Noronha, C., Carnevale, F. Children need privacy too: Respecting confidentiality in paediatric practice, Paediatrics & Child Health, https://academic.oup.com/pch/advance-article/doi/10.1093/pch/pxy047/499909.
- Kinross, L. (2018). Https://bloom-parentingkidswithdisabilities.blogspot.com/2018/05/all-children-have-voices-if-only-we.html. Bloom.
- Passos dos Santos, R., Tatsch Neves, Eliana., Carnevale, F. A. (2018). The moral experiences of pediatric nurses in Brazil: Engagement and relationships.
- Carnevale, F. A., Teachman, G., & Bogossian, A. (2017). A relational ethics framework for advancing practice with children with complex health care needs and their parents. Invited paper accepted for a Special Issue of Comprehensive Child and Adolescent Nursing. For free reprints: http://www.tandfonline.com/eprint/BrvctA2fsK8vdHFsgRWQ/full
- Carnevale F. (2017). A hermeneutical rapprochement framework for clinical ethics practice. Nursing Ethics. https://doi.org/10.1177/0969733017722190
- Bubadué R, Cabral I, Carnevale F, & Asensi F. (2016). Normative analysis of the voice of children in Brazilian child protection legislation. Revista Gaúcha de Enfermagem, 37(4), e58018. Epub February 09, 2017.https://dx.doi.org/10.1590/1983-1447.2016.04.58018
- Carnevale, F. (2016) Reconocer la voz del niño: desarrollando un nuevo paradigma para la ética de la infancia. (Recognizing the voice of the child: Developing a new paradigm for childhood ethics.) Bioetica Complutense 26; 13-19. http://www.youblisher.com/p/1463232-/
- Noronha C, Macdonald ME. (2016) Oral Health Issues in Pediatric Cancer Survivors. In: Treating Vulnerable Populations of Cancer Survivors: A Biopsychosocial Approach, Fitzpatrick, T (ed.), Springer.
- Montreuil, M., & Carnevale,F.A. A concept analysis of children's agency within the health literature. Journal of Child Health Care. 1367493515620914, first published on December 14, 2015 doi:10.1177/1367493515620914
- Carnevale, F. A. (2012). Listening authentically to youthful voices: A conception of the moral agency of children. In J. L. Storch, P. Rodney, & R. Starzomski (Eds.), Toward a moral horizon: Nursing ethics for leadership and practice (2nd ed., pp. 315-332). Don Mills, ON: Pearson Education.
- Janvier, A., Farlow, B., Wilfond, BS. (2012) The Experience of Families With Children With Trisomy 13 and 18 in Social Networks. Pediatrics peds.2012-0151; published ahead of print July 23, 2012,doi:10.1542/peds.2012-0151
- Larcher, V. & Carnevale, F.A. (2012). Ethics. In A. Goldman, R. Hain, & S. Liben, Oxford Textbook of Palliative Care for Children 2nd Ed. (Eds.). Oxford: Oxford University Press, 35-46.
- Weir,M., Evans, M., Coughlin, K. (2011). Ethical decision making in the resuscitation of extremely premature infants: the health care professional’s perspective. J Obstet Gynaecol Can, 33(1):49‐56.
- Bluebond-Langner, M., Atkins, R., Read, N., Priestly, J., & Hart, D. (2010). Adolescents as health agents and consumers: Results of a pilot study of the health and health-related behaviors of adolescents living in a high-poverty, urban neighborhood. Journal of Pediatric Nursing, 25(5), 382-392.
- Gavin, F. (2009). An imaginative partnership: Parents and the doctors who care for their children. Paediatr Child Health, May-Jun; 14(5): 295–297.
- Peter, E., Spalding, K., Kenny, N., Conrad, P., McKeever, P., & Macfarlane, A. (2007). Neither seen nor heard: Children and home care policy in Canada. Social Science and Medicine, 64(8), 1624-1635.
- Carnevale, F.A. (2007). The birth of tragedy in pediatrics. A phronetic conception of bioethics. Nursing Ethics, 14(5), 571-582.
- Coughlin, K.W., Hernandez, L., Richardson, B.S., & daSilva, O.P. (2007). Life and death decisions in the extremely preterm infant: What happens in a level III perinatal centre? Paediatrics & Child Health, 12(7):557‐562.
- Carnevale, F.A. (2005). Ethical care of the critically ill child: A conception of a ‘thick’ bioethics. Nursing Ethics, 12(3), 239-252.
- Shauna Van Praagh et al, « Learning from JJ: An Interdisciplinary Conversation about Child Welfare, Health Care, and Law » (2018) 12 : 1 RD & santé McGill 123.
- Campbell, A., Carnevale, M., Jackson, S., Carnevale, F. A., Collin-Vézina, D., & Macdonald, M. E. (2011). Child citizenship and agency as shaped by legal obligations. Child and Family Law Quarterly, 23(4), 489-512.
- Van Praagh, S. (2009). Magie, contes et sortilèges : Le droit à l’écoute de l’enfant. In B. Moore, C. Bideau-Cayre & V. Lemay (dir.), La représentation de l’enfant devant les tribunaux, Montréal: Éditions Thémis.
- Van Praagh, S. (2007). ‘Sois Sage’ – Responsibility for childishness in the law of civil wrongs. In J. Neyers, E. Chamberlain & S. Pitel (Eds.), Emerging issues in tort law (pp. 63-84). Oxford: Hart Publishing.
- Van Praagh, S. (2005). Adolescence, autonomy and Harry Potter: The child as decision-maker. International Journal of Law in Context, 4(1), 335-373.
Child mental health
- Montreuil, M., Thibeault, C., McHarg, L., Carnevale, F.A (2018). Children's moral experiences of crisis management in a child mental health setting. Int J Ment Health Nurs. 2018 Feb 15. doi: 10.1111/inm.12444.
- Montreuil, M (2017). Moral experiences of crisis management in a child mental health setting: A participatory hermeneutic ethnographic inquiry (Doctoral Dissertation). Retrieved from escholarship@McGill.
- Rousseau, C., Measham, T., & Moro, M. R. (2011). Working with interpreters in child mental health. Child and Adolescent Mental Health, 16(1), 55-59.
- Talwar,V., & Crossman, A. M. (2012). Children’s lies and their detection: Implications for child witness testimony. Developmental Review, 32, 337-359. doi:10.1016/j.dr.2012.06.004
- Talwar, V., & Crossman, A. M. (2011). From little white lies to filthy liars: The evolution of honesty and deception in young children. Advances in Child Development and Behavior, 40, 139-179.
- Talwar, V., & Renaud, S. J. (2010). Trustworthiness of young children as witnesses. In K. Rotenberg (Ed.), Trust and trustworthiness during childhood and adolescence (pp. 177-199). London: Cambridge University Press.
- Talwar, V., & Lee, K. (2008). Social and cognitive correlates of children’s lying behavior. Child Development, 79(4), 866-881.
- Talwar, V., Lee, K., Bala, N., & Lindsay, R. C. L. (2004). Children's lie-telling to conceal a parent's transgression: Legal implications. Law & Human Behavior, 28, 411-435.
- Talwar, V., & Lee, K. (2002). Development of lying to conceal a transgression: Children's control of expressive behavior during verbal deception. International Journal of Behavioral Development, 26, 436-444. doi:10.1080/01650250143000373
- Talwar, V., Lee, K., Bala, N., & Lindsay, R. C. L. (2002). Children’s conceptual knowledge of lying and its relation to their actual behaviors: Implications for court competence examinations. Law and Human Behavior, 26, 395-415.
- Collin-Vézina, D., Daigneault, I., & Hébert, M. (2013). Lessons learned from child sexual abuse research: Magnitude, aftermath, and prevention strategies. Child and Adolescent Psychiatry and Mental Health, 7, 1-9.
- Collin-Vézina, D., Coleman, K., Milne, L., Sell, J., & Daigneault, I. (2011). Trauma experiences, maltreatment-related impairments, and resilience among child welfare youth in residential care. International Journal of Mental Health and Addiction, 9, 577-589.
- Collin-Vézina, D, Trocmé, N., & Hélie, S. (2010). Is child sexual abuse declining in Canada? An analysis of child welfare data. Child Abuse & Neglect, 34, 807-812.
- Trocmé, N., Esposito, T., Laurendeau, C., Thomson, W., & Milne, L. (2009). Knowledge mobilization in child welfare. Criminologie, 42(1), 33-59.
- Sinha, V., Trocmé, N., Fallon, B., & Maclaurin, B. (2013). Understanding the investigation-stage overrepresentation of First Nations children in the child welfare system: An analysis of the First Nations component of the Canadian Incidence Study of Reported Child Abuse and Neglect 2008. Child Abuse & Neglect, 37(10), 821-831.
- Kooiman, H., Macdonald, M. E., Carnevale, F. A., Pineda, C., Nottaway, W., & Vignola, S. (2012). Minododazin: Translating an Algonquin tradition of respect into youth well-being in Rapid Lake, Quebec. Pimatisiwin, A Journal of Indigenous and Aboriginal Community Health, 10(1), 1-15.
- Trocmé, N., Knoke, D., & Blackstock, C. (2004). Pathways to the overrepresentation of Aboriginal children in Canada’s child welfare system. Social Service Review, 78(4), 577-600.
Indigenous Pedagogy on Childhood: SSHRC Imagining Canada's Future Knowledge Synthesis Grant Report
- Rep (2017) Carnevale et al. Advancing Indigenous Pedagogy on Childhood: Identifying priorities for professional education. indigenouspedagogyonchildhood_final_report_carnevale_etal_with_prisma.pdf
- Carnevale, F.A. & Manjavidze, I. Examining the complementarity of ‘children`s rights’ and ‘bioethics’ moral frameworks in pediatric health care. Journal of Child Health Care. first published on December 10, 2015 doi:10.1177/1367493515605173
- Carnevale, F.A., de Moura Bubadué, R, Simões da Fonseca, E., Espírito Santo, A., & Evangelista Cabral, I. (2014). Análise Normativa Dos Padrões Éticos Para Crianças No Brasil (A normative analysis of ethical standards for children in Brazil). Revista da SORBI (Official journal of the Brazilian Sociedade Rio-Grandense de Bioética: SORBI), 2(1), 35-55.
- Manjavidze, I. & Carnevale, F.A. (2013). Pediatric Bioethics in Georgia: A proposed ethical framework. Georgian Medical News, 2013 December (225), 87-93.
- Rousseau, C., Nadeau, L., & Measham, T. (2013). Addressing trauma in collaborative mental health care for refugee children. Clinical Child Psychology and Psychiatry, 18(1), 121-136
- Carnevale, F.A. (2012). Ethical challenges in pediatric palliative care medicine. Médecine Palliative : Soins de Support - Accompagnement – Éthique, 11, 246-251.In French: Préoccupations éthiques en médecine palliative pédiatrique.
- Rul, B., Carnevale, F.A., Estournet, B., Rudler, M., & Hervé, C. (2012). Tracheotomy and children with spinal muscular atrophy type 1: Ethical considerations in the French context. Nursing Ethics, 19(3), 408-418.
- Oriot, D. & Carnevale, F.A. (2010). Problèmes posés par l`arrêt de nutrition et d`hydratation chez l`enfant en soins palliatifs. Médecine Palliative, 9, 26-31.
- Ruiz-Casares, M., Rousseau, C., Derluyn, I., Watters, C., & Crépeau, F. (2010). Right and access to healthcare for undocumented children: Addressing the gap between international conventions and disparate implementations in North America and Europe. Social Science & Medicine, 70, 329-336.
- Carnevale, F. A., Canoui, P., Cremer, R., Farrell, C., Doussau, A., Seguin, M-J., Hubert, P., Leclerc, F., & Lacroix, J. (2007). Parental involvement in treatment decisions regarding their critically ill child: A comparative study of France and Quebec. Pediatric Critical Care Medicine, 8(4), 337-342.
- Behan, J. M., Arora, R. S., Carnevale, F. A., Bakhshi, S., Bhattacharjee, B., & Tsimicalis, A. (2021).An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India. Global Qualitative Nursing Research, 8, 1-14
- Montreuil, M., Noronha, C., Floriani, N., Carnevale, F. A. (2018). Children’s Moral Agency: An Interdisciplinary Scoping Review. Journal of Childhood Studies, Vol 43 No 2, 17-30. https://journals.uvic.ca/index.php/jcs/article/view/18575/7907
- Montreuil, M., Saint-Laurent, O., & Carnevale, F. A. (2017). The Moral Experiences of Children Living in Poverty: A Focused Ethnography. Journal of Childhood Studies, 42, No 2
- Hunt, M. R. & Carnevale, F. A. (2011). Moral experience: A framework for bioethics research. Journal of Medical Ethics, 37, 658-662
Research ethics for childhood research
- Meloni,F., Vanthuyne, K., Rousseau C. (2015) Towards a relational ethics: Rethinking ethics, agency and dependency in research with children and youth. Anthropological Theory , 15: 106-123, doi:10.1177/1463499614565945
- Carnevale, F. A., Macdonald, M. E., Bluebond-Langner, M., & McKeever, P. (2008). Using participant observation in pediatric health care settings: Ethical challenges and solutions. Journal of Child Health Care, 12(1), 18-32.
- Glass, K. C., & Binick, A. (2008). Rethinking risk in pediatric research. Journal of Law, Medicine & Ethics, 36(3), 567-576. doi:10.1111/j.1748-720X.2008.305.x.
- Leadbeater, B., & Glass, K. (2006). Including vulnerable populations in community-based research: New directions for ethics guidelines and ethics research. In B. Leadbeater, E. Bannister, C. Benoit, M. Jansson, A. Marshall & T. Riecken (Eds.), Ethical issues in community-based research with children and youth (pp. 248-266). Toronto: University of Toronto Press.
- Bluebond-Langer, M., DeCicco, A. & Belasco, J. (2005). Involving children with life shortening illnesses in decisions about participation in clinical research: A proposal for shuttle diplomacy and negotiation. In E. Kodish (Ed.), Ethics and research with children: A case-based approach (pp. 323-343). Oxford University Press.
Social studies of childhood
- Bluebond-Langner, M. (1978). The private worlds of dying children. Princeton: Princeton University Press.
- Bluebond-Langer, M. & Nordquest, M. (2008). It’s back: Children’s understanding and communication about their cancer when cure is not likely. In C. Comacchio, J. Golden & G. Weisz (Eds.), Healing the world’s children: Interdisciplinary perspectives on child health in the twentieth century (pp. 161-175). Montreal: McGill-Queens University Press.
- Bluebond-Langner, M., & Korbin, J. (2007). Challenges and opportunities in the anthropology of childhood. The American Anthropologist, 109(2), 241-246.
- Bluebond-Langner, M. & Korbin, J. (2007). Children, childhoods and childhood studies. Special “In Focus” of The American Anthropologist, 109(2).
COVID-19 commentaries & publications
- FINAL REPORT Supporting children and adolescents' mental health in the context of pandemic and confinement: A scoping review of repercussions, interventions and ethical challenges
Michèle Desmarais, a doctoral student working with Marjorie Montreuil and a close VOICE affiliate first-authored this article in French, which discusses mental health impacts and implications for ‘telehealth’ strategies for supporting children and youth.
COVID-19 : santé mentale des enfants et des adolescents
Disability rights: VOICE in action at Ontario Human Rights Tribunal
Community Supports to Assist Children & Youth During COVID - Pitfalls, successes, and necessary next steps. By Sarah Beydoun, Audrey Brunette, Charlotte Hoblyn, Cedric Joseph, Alexandra Wotchinski, Sydney Campbell, Franco A. Carnevale (January 2021). https://franco-carnevale.medium.com/community-supports-to-assist-children-youth-during-covid-19-c3bd5ec42516 FRENCH VERSION: https://franco-carnevale.medium.com/soutien-communautaire-pour-la-jeunesse-durant-la-covid-19-d4af009c0872
Ethical Research Involving Children BLOG Advancing a Childhood Ethics Approach to Research During COVID-19 Campbell, S. & Carnevale, F.A. February 9, 2021. https://childethics.com/blog/advancing-a-childhood-ethics-approach-to-research-during-covid-19/
For a listing of all other COVID-related analyses and commentaries published by VOICE, see: Injustices confronted by children & youth during the COVID-19 pandemic https://www.mcgill.ca/voice/files/voice/injustices_confronted_by_children_youth_during_the_covid-19_pandemic.pdf