Stephen Liben’s research is focused on better understanding the needs of children with life-limiting illness and their families. Research includes evaluating how to ensure that children do not suffer unnecessarily as well as looking at how to best support families through the death of a child.
Stephen Liben is working on a project with the Canadian Virtual Hospice, with funding from Health Canada, to develop a webspace to support the care of a seriously ill or dying infant, child or teen (2019). This webspace would be available to children and teens who have a serious illness or anyone caring for a child (from prenatal to 19 years of age) with any type of serious illness. The project includes five components including funding of approximately $200,000 designate to develop a webspace to support the care of a seriously ill or dying child where both families and HCP can come to one place to find what they need. Team Lead: Dr. Adam Rapoport, Project Manager: Ms. Simone Stenekes. Project advisers: S Liben & others. Stephen continues to work in the area of mindfulness and has conducted multiple workshops on Mindfulness and Clinical Resilience.
Selected Publications
Liben S and Hutchison T. MD Aware: A Mindful Medical Practice Course Guide. Springer Press, 2019.
Cadell S, Hemsworth D, Smit Quosal T, Steele R, Davies E, Liben S, Straatman L, Siden H. Postraumatic growth in parents caring for a child wiht a life-limiting illness: A structural equation model. Am J Orthopsychiatry. 2014 Mar;84(2):123-33.
Liben S, Chin K, Boudreau J, Boillat M, and Steinert Y (August 2012). Assessing a Faculty Development Workshop in Narrative Medicine. Medical Teacher.
Boudreau DJ, Liben S, and Fuks A. A Faculty Development Workshop in Narrative-based Reflective Writing. Perspectives on Medical Education, Published online, August 8, 2012
Macdonald ME, Liben S, Carnevale FA, Cohen SR. Signs of life and signs of death: brain death and other mixed messages at the end of life. J Child Health Care 12(2): 92-105, 2008
Liben S, Papadatou D, Wolfe J. Paediatric palliative care: challenges and emerging ideas. Lancet 371(9615): 852-864, 2008
Mongeau S, Champagne M, Liben S. Participatory research in pediatric palliative care: benefits and challenges. J Palliat Care 23(1): 5-13, 2007