Iyer has been collaborating with the Schizophrenia Research Foundation in Chennai, India since 2006. This collaboration involved a large comparative study of multiple outcome domains and family factors in early psychosis between persons receiving early intervention services for first-episode psychosis in a low-middle income (Chennai, India) and a high-income (Montreal, Canada) context. This study was supported by the National Institutes of Health, U.S.A.
For this study, the collaborating teams created measures of novel constructs (e.g., What level of responsibility for recovery would you assign patients versus their families versus their treatment providers); and adapted existing measures to make them relevant in both contexts (e.g., references to going to church or playing rugby were replaced with more locally pertinent references) and to make them more youth-friendly (e.g., added video games in a measure of recreational activities). Creation and adaption involved various steps such as a review of the literature, qualitative methods and consultations with various stakeholders such as persons with lived experience, staff and researchers from both teams.
All measures were also translated and back-translated from English into Tamil and Canadian French using best practices. Many of these new and adapted measures were examined for their psychometric properties such as test-retest reliability – do people respond to measures similarly if they fill out this week and then two weeks later?; and validity – are scores on the new measure associated with scores on a similar but well-established measure?).
All measures are available for use free of cost by using links on this website or emailing srividya.iyer [at] mcgill.ca. Please contact Srividya if you plan to modify or translate any of these measures.
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PROGRAM OR HIGHER-LEVEL ASSESSMENTS |
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Dimension |
Instrument |
Description |
Background |
Rater |
Time of Assessment |
Available at: |
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Experience of Care |
Show Me You Care |
A self-report of experience of treating team |
Novel questionnaire based on literature review and discussions with stakeholders |
PREM FREM |
During treatment |
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[Wake-Forest Physician] Trust Scale |
A self-report of trust in treating doctor and case manager + trust in mental health-care system |
Adapted Wake-Forest Physician Trust Scale (Dugan et al, 2005) to also examine trust in case managers + adapted one-question about trust in health-care system (Mohseni & Lindstrom, 2007) |
PREM FREM |
During treatment |
For adaptation, Tamil or French versions, please contact: srividya.iyer [at] mcgill.ca |
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[Wake-Forest] Trust [in Medical Profession] Scale |
A self-report of trust the medical profession in general + trust in health –care and mental health-care systems |
Adapted Wake-Forest Trust in Medical Profession Scale (Dugan et al, 2005) to also examine trust in medical profession + used and adapted one-question about trust in health-care system (Mohseni & Lindstrom, 2007) |
PREM FREM CREM |
Entry to program |
For the single item on trust in the mental health system, and for Tamil or French versions, please contact: srividya.iyer [at] mcgill.ca |
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| Allocation of Responsibility | ShareDISK | A visual clinical or research tool for assessing distribution of responsibilities between patients, clinicians, and treatment provider overall | Novel measure |
Patient Family- Member Clinician |
During treatment |
https://doi.org/10.1177/0020764020913580 |
| Whose Responsibility Scale | A self-report asking respondents to assign relative responsibility to combinations of the government, persons with mental health problems, and family for seven support needs | Novel questionnaire based on iterative discussions of clinician-scientists and mental health professionals in both Chennai and Montreal |
Patient Family- Member Clinician |
During treatment (patient & family); One-time (clinician) |
https://doi.org/10.1186/s13033-021-00510-x | |
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PATIENT-LEVEL ASSESSMENTS |
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Dimension |
Instrument |
Description |
Background |
Rater |
Time of Assessment |
Available at: |
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Functioning |
Functional Outcomes Interview |
A semi-structured interview by clinician providing a thorough assessment of multiple functional roles and aspects of each role |
Novel interview with some questions adapted from relevant sections of the Client Service Receipt Inventory (Chisholm et al., 2000) and WHO Life Chart Schedule (Susser et al., 1992). |
CROM |
During treatment |
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Roles and Aspirations among Youth |
A patient-reported measure of current role functioning and future aspirations |
Novel questionnaire with some items adapted from Wisconsin Quality of Life Interview (Becker et al., 1993) and the Social Functioning Scale (Birchwood et al., 1990). |
PROM |
During treatment |
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Social Functioning Scale – Early Intervention |
A patient-reported measure of social, recreational and independent functioning |
Adapted from Social Functioning Scale (Birchwood et al., 1990) prosocial, recreation & independence-performance scales. Novel items added to update + objective ratings of expected independence-performance from evaluators |
PROM + CROM (expected performance) |
During treatment |
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Quality of Life / Recovery |
Wisconsin Quality of Life Index- Client Questionnaire |
Self-report of patient satisfaction with various aspects of their lives and the importance attributed to these aspects |
Used Wisconsin Quality of Life Interview (Becker et al., 1993) general satisfaction & social relations domains + two novel items |
PROM |
During treatment |
srividya.iyer [at] mcgill.ca |
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Hope
|
Self-report of four aspects of hope for the future
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Novel questionnaire
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PROM
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During treatment
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srividya.iyer [at] mcgill.ca
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Allocation of Responsibility |
ShareDISK (specific question) |
A visual clinical or research tool for assessing distribution of responsibilities between patients, clinicians, and treatment providers in their particular case |
Novel measure |
Patient Family- Member Clinician |
During treatment
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FAMILY-LEVEL ASSESSMENTS |
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Dimension |
Instrument |
Description |
Background |
Rater |
Time of Assessment |
Available at: |
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Family Involvement |
Family Involvement Questionnaire |
A self-report designed to assess the role that families play in the lives and treatment/follow-up of patients. |
Novel questionnaire based on focus groups in Montreal and Chennai |
PROM FROM CROM |
During treatment |
For English, French or Tamil versions, please contact: srividya.iyer [at] mcgill.ca |
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Wisconsin Quality of Life Index- Provider Questionnaire |
An assessment of social support and relations with family and friends |
Used Wisconsin Quality of Life Interview (Becker et al., 1993) social relations/ support domain |
CROM |
During treatment |
For French or Tamil versions, please contact: srividya.iyer [at] mcgill.ca |
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Insight/Awareness of Psychosis |
Scale of Unawareness of Mental Disorders |
An interview assessing observed changes in the ill family member’s behavior, the awareness of psychosis, the attribution of symptoms to the illness, and acknowledgement of the need for medication |
Adapted from Scale of Unawareness of Mental Disorders (Amador et al., 1994) for family members |
CROM |
During treatment |
For adaptation, French or Tamil versions, please contact: srividya.iyer [at] mcgill.ca |
