Online Resources

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Our Online Books

Amongst the hun­dreds of books avail­able in our Cat­a­logue, here are the ones also avail­able online:

ADHD

ADHD : Find­ing the Way by Familiprix (2018)
This guide was designed mainly to inform parents about ADD with or without Hyperactivity (ADHD). In this guide, you'll find some tips and tools you can use at home to help your child modify their behavior and learn to manage their disorder.

Alzheimer’s Dis­ease

Alzheimer’s by Familiprix (2018)
Unfortunately, some diseases can affect our brains, like Alzheimer’s disease. This condition may have serious repercussions and affect the quality of life of those affected as well as those around them. This guide has been designed to help you understand this disease better, to learn to live with its constraints, and to equip people affected by it as well as their loved ones.

Amy­otrophic Lat­eral Sclerosis:

A man­ual for peo­ple liv­ing with ALS by Jane McCarthy (2012)
The purpose of this Manual is to provide information and helpful hints to individuals and families recently diagnosed and living with ALS. The content of the Manual represents an overview of ALS, coping tips and tools, where to go for help and support, and issues people diagnosed with ALS should begin thinking about.

Cop­ing with grief : Strate­gies for peo­ple liv­ing with ALS by the Amy­otrophic Lat­eral Scle­ro­sis Soci­ety of Canada (n.d.)
This resource provides information on how to deal with feelings of grief and loss following an ALS diagnosis and as the disease progresses. Grieving is a stressful process that may affect you in ways you didn’t anticipate. This book provides its reader with tools to learn how to better cope.

Every­day life with ALS : a prac­ti­cal guide by Mus­cu­lar Dys­tro­phy Asso­ci­a­tion (2010)
This guide has been prepared for those who are living in the world of ALS. The purpose of this guide is to provide a ready source of practical information to help you manage the physical aspects of ALS on a day-to-day basis, through all stages of the disease. The overarching goal is to allow you to maintain function and independence for as long as possible, and always to maintain the best possible quality of life.

Brain Tumors:

About brain tumors : a primer for patients and care­givers by the Amer­i­can Brain Tumor Asso­ci­a­tion (2015)
Learning you or your loved one has a brain tumor can be very frightening. You may know little about tumors and even less about the brain. You might be confused about the new terms you are hearing, angry because you need to make decisions you are not prepared for and dazed by all of the changes in your life. This book was written to help you, your family and your friends learn more about brain tumors.

Brain can­cer : Gliomas by the National Com­pre­hen­sive Can­cer Can­cer Net­work Foun­da­tion (2021)
Being diagnosed with a brain tumor can be frightening and overwhelming. This book will help you make sense of all the information that's out there. It will also describe your options for treatment. Taken together, you'll have the confidence to make well-informed decisions.

Care­giv­ing:

A Caregiver’s Guide: A Hand­book about End-​of-​Life Care by Karen Macmil­lan, Jacquie Peden, Jane Hop­kin­son, and Den­nie Hycha (2015)
This book provides guidance and assistance and addresses the many fears and uncertainties about terminal illness and caregiving in clear and simple terms. Further, it focuses on the physical, emotional, and spiritual needs of patients and their families.

Resource guide for sup­port­ing care­givers at home by Dre Diane Doran, Dr Régis Blais, Julie McShane (2014)
A scan of Canadian grey literature shows that some resources to support caregivers in their roles, has been undertaken and created across Canada; however, the resources can be difficult to find, and there is a lack of either provincial or national infrastructure to enable sharing and uptake. The resources included in this toolkit, drawn from national, provincial and regional sources, are an attempt to fill this gap.

Chiari mal­for­ma­tion:

Chiari mal­for­ma­tion and syringomyelia : a hand­book for patients and their fam­i­lies by Ulrich Batz­dorf (2020)
The Chiari and syringomyelia handbook is a comprehensive resource guide for patients and families affected by Chiari Malformation and syringomyelia.

Dia­betes:

The Cana­dian Type 2 Dia­betes Source­book by M. Sara Rosen­thal (2009)
The Canadian Type 2 Diabetes Sourcebook, 2nd edition is the ultimate resource, providing everything you need to know about this disease. Learn how Type 2 diabetes affects your body. Find out how to assemble the best health care team and how to make lifestyle changes that will keep you healthy.

All about Dia­betes : A guide to under­stand­ing dia­betes by Familiprix (2014)
This guide is a tool that complements the information you’ll receive from the various healthcare professionals you’ll meet (nutritionist, nurse, doctor, pharmacist, kinesiologist, etc.). Its goal is to help you better understand what diabetes is, what the different types of diabetes are, how to monitor your blood glucose at home, what the potential complications of diabetes are, and how to prevent them.

Epilepsy:

Epilepsy A to Z : A Con­cise Ency­clo­pe­dia by William O. Tatum (2009)
This book was designed to provide health care professionals with a quick and easy way to find short answers to questions that revolve around terms and language commonly used within the field of epileptology. The goal of this new edition of Epilepsy A to Z, is to provide a “bullet” of information pertaining to essential topics that are intermediate between a definition obtained from a dictionary and a textbook discussion

Epilepsy : patient and fam­ily guide by Orrin Devin­sky (2008)
This book is an excellent source of accurate and insightful information on the medical aspects of epilepsy. It provides valuable information, which will enable you to work in collaboration with your neurologist and health care team toward the goal of no seizures and no side effects. This new edition also provides information on the exciting new developments in the treatment of epilepsy since the publication of the second edition in 2000, including expanded sections on alternative and dietary therapies, updates on mood disorders and vital information on sudden unexplained death syndrome.

Genet­ics:

ABC of Clin­i­cal Genet­ics by Helen M. Kingston (2002)
The aim of this third edition of the ABC is to provide an introduction to the various aspects of medical genetics for medical students, clinicians, nurses and allied professionals who are not working within the field of genetics, to generate an interest in the subject and to guide readers in the direction of further, more detailed information.

Health Guide:

The How To Health Guide by the Health Char­i­ties Coali­tion of Canada (2016)
If you or someone you love and care for is trying to find health services, support, or information for an illness or disease, there are actions you can take to help get the best possible care. This is a guide to help you learn best practices including how to understand the health care system, find the information and services you need, and advocate and ask for the support you need.

Men­tal Health:

Catch a falling star by Gayle Grass (2001)
Iris the Dragon’s books address a variety of mental health disorders and stress the need for creating a supportive and understanding community to help deal with issues relating to a mental health disorder and to reduce the stigma surrounding this topic. This book presents readers with a variety of symptoms that could be considered “red flags” in a child’s emotional and social development.

Migraine:

Migraines by Familiprix (2018)
This guide will help you understand migraines better and give you some tips for relieving and preventing symptoms. You’ll also find a calendar at the end of the guide that you can use to track your headaches. It will be useful for you and your healthcare professional. With this tool, you can maintain your quality of life and deal with what’s on your mind in peace!

Mul­ti­ple Sclerosis:

Car­ing for loved ones with advanced MS : a guide for fam­i­lies by Dorothy E. Northrop (2010)
This booklet is designed for families who are caring for a person with advanced multiple sclerosis (MS). By “advanced” we mean that the person with MS is entirely dependent on others for his/her personal care and daily activities, is rarely able to leave the home, cannot be left alone for any extended period of time, and has complex clinical issues. The purpose of this booklet is to provide information, caregiving tips, and support to families providing significant daily care to a family member with MS.

Mul­ti­ple scle­ro­sis : a focus on reha­bil­i­ta­tion by Ros­alind Kalb (2010)
In the course of their work with people living with MS, rehab specialists evaluate and explain disease-related impairments and provide interventions to maximize function, promote health, and prevent unnecessary complications. This book provides an overview of MS and its treatment, with an emphasis on the unique role of rehabilitation professionals in the treatment process

Mul­ti­ple scle­ro­sis : the facts you need by Paul O’Connor (2009)
This fifth edition of Multiple Sclerosis: The Facts You Need will review new information on the causes and treatment of multiple sclerosis. his new edition provides a valuable resource for the patient and family managing the challenges of MS. It is an up-to-date, clear and balanced overview of the understanding of MS and its treatment.

Stretch­ing for peo­ple with MS : an illus­trated man­ual by Beth E. Gib­son (2007)
Everyone with MS, regardless of his or her degree of ability or disability, needs regular physical activity. Good exercise programs not only prevent problems, they promote a sense of achievement and well-being. This booklet focuses on basics to move and gently stretch muscles and tendons, on your own, at your own pace.

Stretch­ing with a helper for peo­ple with MS: an illus­trated man­ual by Beth E. Gib­son (2007)
Everyone with MS, regardless of his or her degree of ability or disability, needs regular physical activity. Good exercise programs not only prevent problems, they promote a sense of achievement and well-being. This booklet focuses on showing your helper how to move and gently stretch your muscles and tendons.

Ben­jamin : my mum is spe­cial by Ste­faie Lazai (2005)
This book tells us, in a gentle and discreet manner, Benjamin and his mother who has Multiple Sclerosis (MS). Benjamin provides a view of Multiple Sclerosis through the eyes of a child struggling to understand his mother’s mysterious and sometimes frightening illness. The ties between Benjamin and his mother are strengthened as they deal with MS together, forging new bonds of understanding.

Immune Sys­tem — 3 dis­eases by Familiprix (2017)
There are 50 known auto-immune diseases. This guide will talk about three of them: Crohn’s disease, multiple sclerosis, and rheumatoid arthritis. They’re more common than you think, and you’ll learn more about each one.

Neu­ro­science:

Neu­ro­science : Sci­ence of the Brain — An Intro­duc­tion for Young Stu­dents by the British Neu­ro­science Asso­ci­a­tion (2003)
The human brain is the most complex organ of the body, and arguably the most complex thing on earth. This booklet is an introduction for young students. In this booklet, we describe what we know about how the brain works and how much there still is to learn.

Pain:

Work­ing together when fac­ing chronic pain: a book designed for patients and writ­ten by their health pro­fes­sion­als by Louise O’Donnell-Jasmin (2010)
Working together when facing chronic pain is a book intended to support the efforts of all those suffering from chronic pain and their loved ones to self-manage chronic pain. Education about this pain is one of the solutions to which this book opens doors. This work is also intended for all health professionals who want to learn more about the issues and aspects specific to chronic pain, and benefit from the experience of their colleagues and the testimonials of patients.

Liv­ing with Chronic Pain by Familiprix (2014)
This is a guide that presents readers with background information on chronic pain, as well as tips and tricks to effectively manage chronic pain.

Paral­y­sis:

Paral­y­sis resource guide by Sam Mad­dox (2009)
This book, created by the Christopher & Dana Reeve Foundation Paralysis Resource Center (PRC), offers comprehensive information and connections. Our goal is to help you find what you need to stay as healthy, as active and as independent as possible. The book serves the full community of people affected by paralysis, including of course loved ones and caregivers—people who know how paralysis can be a family issue.

Parkinson’s Dis­ease:

Care Part­ner­ing : Man­ag­ing Parkinson’s Dis­ease Together by Parkin­son Canada (2019)
This book was developed to help you and the one whom you care for, to co-manage daily life with Parkinson’s. We encourage you to use this book as a valuable tool to spark conversations between you and your care recipient, and help you partner with the healthcare providers that treat your care recipient

Nav­i­gat­ing Cog­ni­tive Changes in Parkinson’s Dis­ease by Rachel Dol­hun MD (2019)
Many people and families with Parkinson’s say they worry about possible thinking and memory (cognitive) changes. This guide answers common questions concerning Parkinson's, and provides information about how thinking and memory can change over time, tips to boost brain health and manage cognitive symptoms, stories of people living with thinking and memory changes, and research toward new and better treatments and tests.

Deep Brain Stim­u­la­tion : Prac­ti­cal Guide for Patients and Fam­i­lies by Michael S. Okun MD and Pamela R. Zeil­man MSN (n.d.)
The aim of this book is to describe a type of surgical treatment that can be utilized to reduce Parkinson's Disease symptoms in a subset of carefully selected individuals with a specific symptom or symptoms potentially responsive to this type of therapy.

Patient Safety :

Patient Engage­ment in Patient Safety Guide, Cana­dian Patient Safety Insti­tute (2017)
This extensive resource, based on evidence and leading practices, helps patients and families, patient partners, providers, and leaders work together more effectively to improve patient safety. Working collaboratively, we can more proactively identify risks, better support those involved in an incident, and help prevent similar incidents from occurring in the future. Together we can shape safe, high-quality care delivery, co-design safer care systems, and continuously improve to keep patients safe.

Pro­gres­sive Supranu­clear Palsy:

A Guide For Peo­ple Liv­ing With PSP, CBD by CurePSP (2012)
This book is a guide for people living with PSP, CBD, MSA, and other atypical Parkinsonian disorders.

Guide­book: A Resource For Peo­ple Liv­ing With Prime of Life Neu­rode­gen­er­a­tive Dis­ease by CurePSP (2018)
This guidebook can be used in various ways. It is a great learning tool so you can become more knowledgeable about prime of life diseases such as PSP, CBD, and MSA and it allows you to go back and refresh your memory on questions that come up over time. You’ll find information regarding symptoms that will emerge over the course of the disease and this will help answer your questions about what to expect.

Stroke:

7 Steps to Stroke Recov­ery by the Stroke Recov­ery Asso­ci­a­tion of British Colum­bia (2014) (VIDEO)
Not knowing where to go for help in the community, not knowing what is available and not knowing how to access programs is tremendously confusing and frustrating. Stroke survivors and family caregivers need relevant education and practical guidance on living life after stroke. This educational video is a tool for anyone wishing to learn about stroke recovery. It outlines 7 Steps that will assist stroke survivors and caregivers in knowing how to continue the process of stroke recovery in the community after hospital discharge.

There is Life after Stroke : Inter­views with Stroke Sur­vivors by the Stroke Recov­ery Asso­ci­a­tion of British Colum­bia (2013) (VIDEO)
The SRABC provides services, education and advocacy to those affected by stroke throughout every stage of recovery. This video includes interviews with Stroke Survivors as they recount their journeys.

Your Stroke Jour­ney: A guide for peo­ple liv­ing with stroke by the Heart and Stroke Foun­da­tion of Canada (2018)
This guide is written for adults who have had a stroke. We also hope that your care partners, family and friends find it helpful. We have designed this guide to: help you understand stroke and its effects, give you tips and strategies for living your life fully, help you know that you are not alone in your recovery, tell you about the support services, healthcare providers and networks of stroke survivors that can help you on your journey.

Keep a Healthy Heart! by Familiprix (n.d.)
In this guide, we’ll look at some types of diseases that can affect the cardiovascular system and what to do to prevent them.

Legal:

PDF iconMY PROTECTION MANDATE BOOKLET AND FORMPDF iconMON MANDAT DE PROTECTION GUIDE ET FORMULAIRE (FR) by Pub­li­ca­tions du Québec (2017)
The protection mandate, which used to be called “a mandate in case of incapacity,” is designed to deal with situations of "incapacity". It lets you name, in advance, one or more people to look after your well-being and manage your property if you become unable to do so yourself. You can also specify what you want their responsibilities to be. This booklet will provide you with the information you need to prepare your own protection mandate.

A Close Rel­a­tive or Friend Becomes Inca­pac­i­tated — How Can You Pro­tect Them? by Pub­li­ca­tions de Que­bec (2017)
When a loved one can no longer take care of themselves or manage their affairs due to illness, accident or age-related loss of autonomy, what can you do to help them? This guide applies to anyone close to you who is starting to experience behavioural or health problems that are impeding their ability to make decisions and manage their affairs.


Our Pamphlets for Patients

MUHC Publications

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