What is PROMIS?
The Patient Reported Outcomes Measurement Information System (PROMIS®) is a set of person-centered measures to assess how people feel and function. PROMIS uses advances in information technology, psychometrics, and qualitative, cognitive, and health survey research to measure patient reported outcomes such as pain, fatigue, physical function, emotional distress, and participation that have a major impact on quality-of-life across chronic diseases. Self reported and parent-reported measures in adults and children are available.
PROMIS tools measure how adults and children feel and function. Try a PROMIS Computer Adaptive Test here.
To Obtain and Administer PROMIS Measures in Canada
English versions are available here.
French versions of many measures are available by contacting us directly. To request any other language, please contact translations [at] HealthMeasures.net. Note that French and other available languages are subject to a distribution fee.
Please note that PROMIS measures cannot be translated without permission. Be sure read the Terms and Conditions of Use here for more information.
Interested in contributing to PROMIS? We are looking for researchers who want to participate in:
- translation, validation and adaptation of PROMIS into French for use in Canada
- validation in different patient groups
- implementation of PROMIS across care settings
- development of additional item banks
For information on availability and use of French translations of PROMIS, please contact susan.bartlett [at] mcgill.ca or sara.ahmed [at] mcgill.ca.
PROMIS International includes activities conducted by US PROMIS researchers and international partners. Drs. Susan Bartlett and Sara Ahmed at McGill University are leaders of the PROMIS Canada initiative and are members of the PROMIS International Steering Committee and PROMIS Health Organization Board of Directors.
Information about the PROMIS family of measures(PROMIS, Neuro-QOL, ASCQ-ME, NIH Toolbox) can be found here.
Information about scoring and interpreting PROMIS is available here.
The PROsetta Stone initiative has established links between PROMIS scores and legacy measures for depression, anxiety, physical function, pain, fatigue, global here and others. Linking tables are available here.
Programs and sessions from past PROMIS Health Organization scientific meetings, workshops, and upcoming events can be found here.
For more on data collection tools you can use with PROMIS, click here.
For a list of PROMIS publications, click here.
Read The User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice developed by the International Society of Quality of Life (ISOQOL) here.
Read about Patient-Reported Outcomes in Performance Measurement here.
Canada PRO Initiative
Division of Clinical Epidemiology
Centre for Outcomes Research and Evaluation
5252 de Maisonneuve, #3D.57
Montreal, Quebec H4A 3S5
susan.bartlett [at] mcgill.ca
sara.ahmed [at] mcgill.ca
translations [at] HealthMeasures.net
*HealthMeasures is the official information and distribution center for PROMIS, Neuro-QoL™, NIH Toolbox®, and ASCQ-Me®, which were developed and evaluated with National Institutes of Health (NIH) funding. PROMIS, Patient-Reported Outcomes Measurement Information System, and the PROMIS logo are marks owned by the U. S. Department of Health and Human Services.