PROMIS-Canada

Patient Reported Outcomes Measurement Information System (PROMIS®) is a system of highly reliable, valid, flexible, precise, and responsive measures of patient–reported health status for physical, mental, and social well–being. To learn more about PROMIS, visit www.nihpromis.org.

PROMIS tools measure what patients are able to do and how they feel by asking questions. PROMIS measures can be used as primary or secondary endpoints in clinical studies of the effectiveness of treatment, and PROMIS tools can be used across a wide variety of chronic diseases and conditions and in the general population. The PROMIS initiative, which began in 2004, is funded by the National Institutes of Health (NIH) in the United States.

PROMIS International involves activities conducted by US PROMIS researchers and PROMIS international partners. Dr. Susan Bartlett at McGill University is the Canadian representative on the PROMIS International Steering Committee.

 

PROMIS in Canada

We are looking for researchers who want to participate in the following activities:

  • translation and validation of PROMIS into French for use in Canada
  • adaptation of item banks and short forms
  • validation in different patient groups to examine the statistical properties of the items and items banks
  • development of Canadian norms
  • development of additional item banks

For information on availability and use of French translations of PROMIS, please contact susan.bartlett [at] mcgill.ca.

 

PROMIS Measures for Adults and Children available in French (January 2018):

 

Adult Measures

Item Bank  Short Forms
Emotional Distress - Anxiety v1.0 in progress 4a in progress 4a

Emotional Distress - Depression v1.0

in progress

8b, 4a, 6a

Fatigue v1.0 

in progress 

7a, 4a, 6a, 8a
Pain Behaviour v1.1 in progress  
Pain Interference v1.1 in progress 4a, 6b
Physical Function v1.1 and v1.1/2 SFs

in progress

4a, 6b, 8b, 10a, 10b, 20a
Sleep Disturbance v1.0

in progress

4a, 6a, 8a
Sleep Related Impairment v1.0 

in progress

 
Ability to Participate in Social Roles and Activities V2.0

in progress

4a
Global Health v1.2  
Psychosocial Impact - Negative and Positive  in progress  
Pain Quality - Neuropathic pain  in progress  
Pain Quality - Nociceptive Pain in progress  
Self Efficacy - General in progress  
Self Efficacy for Managing Chronic Conditions - Daily Activities

in progress

 
Self Efficacy for Managing Chronic Conditions - Emotions

in progress

 
Self Efficacy for Managing Chronic Conditions - Meds/Treatment

in progress

 
Self Efficacy for Managing Chronic Conditions - Social Interactions

in progress

 
Self Efficacy for Managing Chronic Conditions - Symptoms

in progress

 
PROMIS-29 v2.0/2.1

 
Pediatric Measures  Item Bank Short Forms  Parent Proxy
Pediatric Global Health (PGH-7) v1.0

 

Pediatric Global Health 7+2 v1.0    

Pain Interference v2.0    

 

Do you need a French version of a PROMIS instrument now?  Please contact susan.bartlett [at] mcgill.ca to see if translations are currently underway, or to help support new translations.

 

PROMIS Resources

 

Information about the PROMIS family of measures(PROMIS, Neuro-QOL, ASCQ-ME, NIH Toolbox) can be found here.

Information about scoring and interpreting PROMIS is available here.

The PROsetta Stone initiative has established links between PROMIS scores and legacy measures for depression, anxiety, physical function, pain, fatigue, global here and others. Linking tables are available here.

Learn more about PROMIS measurement science and PROMIS validation – can be found here and here.

Programs and sessions from past PROMIS Health Organization scientific meetings, workshops, and upcoming events can be found here.

Learn more about how to select patient reported outcomes (PRO) here and here.

For more on data collection tools you can use with PROMIS, click here.

For a list of PROMIS publications, click here.

Read The User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice developed by the International Society of Quality of Life (ISOQOL) here.

Read about Patient-Reported Outcomes in Performance Measurement here.