Facilitator: AdrianThorogood, LL.B./B.C.L., Academic Associate, Centre of Genomics and Policy, McGill University
Respect for and protection of privacy in research is an internationally recognized legal and social norm, as well as ethical standard. Research participants have far-ranging interests in the protection of privacy, and researchers have corresponding duties to treat personal information in a confidential manner. But what exactly do these complex interests and duties entail? This interactive workshop will cover Quebec and Canadian privacy laws, duties of confidentiality, and policies and guidelines pertaining to the protection of privacy and consent for the collection, use or disclosure of information about research participants.
Readings: (Please see hyperlinks below for full readings)
Chapter 5 (Privacy and Confidentiality), art. 5.1-5.7; p. 55-65
Chapter 9 (Research involving the First Nations, Inuit and Métis Peoples of Canada), art. 9.16, 9.21-9.22; p. 126-128, 131-132
Chapter 10 (Qualitative Research), art. 10.4; p. 143-144
Chapter 11 (Clinical Trials), art. 11.7; p. 159-161