Robin Cohen has focused her research on optimizing the quality of life of palliative care patients and that of their family caregivers. She began by developing measures of their quality of life (MQOL: McGill Quality of Life Questionnaire; QOLLTI-F: Quality of Life in Life-Threatening Illness – Family Caregiver version), and continues to work on improving them. With those outcome measures she has conducted some descriptive studies and she is now developing and testing interventions to improve patient and family caregiver quality of life. She is also planning to develop projects to galvanize communities to be more involved in helping families with a member at the end of life. Currents studies at McGill include:
- Implementing and formatively evaluating a volunteer Caregiver Coach service with the goal of empowering and supporting family caregivers of palliative care patients at home (with several colleagues and students)
- Testing interventions to help advanced cancer patients, their family caregivers, and people who are recently bereaved to establish a new sense of purpose and meaning in life taking into account their new situation (with Melissa Henry and Christopher MacKinnon)
- Elucidating how advanced cancer patients make meaning (with Antoine Beauchemin)
- Developing and testing a physical activity intervention to improve family caregiver outcomes (with Jamie Penner)
- Studying how a specialized interdisciplinary team makes treatment decisions to treat cachexia in advanced cancer patients (with Monica Parmar Calislar)
- Developing, implementing, and evaluating a program to increase acut care nurses' ability to provide and comfort with a palliative approach to caring for advanced heart failure patients (with Esther Laforest). She has a close collaboration with colleagues Richard Sawatzky and Kelli Stajduhar in British Columbia. These studies include a randomized controlled trial of integrating a formal assessment of family caregiver needs into palliative homecare nursing as well as integrating assessment of patient and family caregiver quality of life concerns and their experience with healthcare into routine care of elderly people with serious chronic illness, including those at the end of life.
Russell L, Gadermann A, Sawatzky R, Cohen SR. (2015). The McGill Quality of Life Questionnaire – Expanded (MQOL-E) and the concept of overall quality of life. Poster presentation at the 22nd Annual Conference of the International Society for Quality of Life Research (ISOQOL). Oct 21st-24th, Vancouver, BC. Quality of Life Research.
Chan E, Sawatzky R, Gadermann A, Cohen SR, & PROMs PREMs Knowledge Synthesis Team. (2015). PROMs and PREMs for elderly patients in acute care and their families: An EMPRO evaluation. Oral presentation at the 22nd Annual Conference of the International Society for Quality of Life Research (ISOQOL). Oct 21st-24th, Vancouver, BC. Quality of Life Research.
Cohen SR, Cherba M, Keats S, MacKinnon CJ, *Penner JL, *Parmar Calislar MP, Bitzas V, Kogan N, Feindel A, Allen D, Baxter S, O’Brien S, Stajduhar K, Lapointe B. (2015). A volunteer Caregiver Coach service: helping family caregivers cope and maintain their own wellbeing while caregiving and in early bereavement. Workshop at the Canadian Hospice Palliative Care Conference.Oct 29th – Nov 1st, Ottawa, Ontario.
Milman E, Beauchemin A, Smith NG, Henry M, Cohen SR, & MacKinnon CJ. (2015) The expression of the Continuing Bond: The bereft and their relationship with the deceased. Paper to be presented at the 76th Annual Convention of the Canadian Psychological Association.June 4-6, Ottawa, ON.
*MacKinnon CJ, Milman E, Henry M, Smith NG, Chochinov HM, Körner A, Cohen SR. (2015). Meaning-based group counseling: A novel intervention for cancer bereavement. Workshop at the Canadian Association of Psychosocial Oncology (CAPO) Conference.April 22-24th, Montreal, Quebec.
Cohen SR, Cherba M, *Parmar Calislar MP, MacKinnon CJ, Bitzas V, *Penner JL, Keats S, Kogan N, Feindel A, O’Brien S, Baxter S, Lapointe B. (2015). How volunteer Caregiver Coaches help family caregivers of cancer patients at the end of life maintain their emotional wellbeing. Oral presentation at the Canadian Association of Psychosocial Oncology (CAPO) Conference.April 22-24th, Montreal, Quebec.
*Bitzas V, Thibeault C, Carnevale F, Ezer H, Macdonald ME, Cohen SR. The lived experience of hospitalized dying patients waiting for a transfer to palliative care. Oral Presentation at the Annual Canadian Association of Nurses in Oncology (CANO) Conference: Patient engagement. Quebec City, QC, Oct 26-29th, 2014.
Chan EKH, Sawatzky R, Dixon D, Wolfs DM, Gadermann AM, PROM-PREM Knowledge Synthesis Team (including Cohen SR). Bibliometric Analysis of PROMs and PREMs for Elderly Patients in Acute Care. Oral presentation at the 21st Annual Conference of the International Society for Quality of Life Research (ISOQOL), Berlin, Germany, Oct 15-18, 2014.
Sawatzky RS, Cohen SR, and *Laforest E. The development and use of tablet-based quality of life assessment instruments in clinical practice. Workshop at the International Congress on Palliative Care, Montreal, QC, Canada, Sept 9-12, 2014.
Sawatzky R, Chan EKH, Dixon D, Wolfs DM, Gadermann AM, Cohen SR, & PROM-PREM Knowledge Synthesis Team. Patient- and Family-Reported Outcome and Experience Measures for Seriously Ill Elderly Patients. Poster Presentation at the 20th International Congress on Palliative Care, Montreal, QC, Canada, Sept 9-12, 2014.
*MacKinnon CJ, Milman E, Smith NG, Henry M, Körner A, Chochinov HM, Cohen SR. Meaning-based group counseling for bereavement: Reconstructing meaning with others in loss. Workshop at the International Congress on Palliative Care, Montreal, QC, Canada, Sept 9-12, 2014.
*MacKinnon CJ, Milman, E, *Beauchemin A, Smith, NG, Henry M, Cohen SR. Examining how the bereft form Continuing Bonds in the context of a bereavement support group.Oral presentation at the International Congress on Palliative Care, Montreal, QC, Canada, Sept 9-12, 2014.
Cohen SR, *MacKinnon CJ, *Khadoury A, Dewitte M, *Parmar Calislar M, *Penner JL, Feindel A, *Bitzas V, Kogan N. Training volunteer “caregiver coaches” to coach family caregivers to maintain their health and provide care in home-based palliative care. Workshop at the International Congress on Palliative Care, Montreal, QC, Canada, Sept 9-12, 2014.
*Rykov MH, Cohen SR, Leis A, Macdonald ME, Weeks V, Cadrin ML, Pringle A. Palliative Care Music Therapy: A Canadian Multi-Centre Palliative Care Unit Inquiry. Oral presentation at the International Association for Music & Medicine Conference 2014 Jun 25-27; Toronto, Ontario, Canada.
*Penner JL, Cohen SR, Dalzell MA, Ducharme F, Sabiston C. Development of a home-based physical activity intervention for family caregivers of people with advanced cancer. Oral presentation at the 2014 Canadian Association of Psychosocial Oncology Conference, 2014 Apr 29-May 2, Winnipeg, Manitoba, Canada.
*MacKinnon CJ, Smith NG, Henry M, Milman E, Berish M, Farrace A, Körner A, Chochinov HM, Cohen SR. A pilot study of meaning-based group counseling for bereavement. Omega: Journal of Death and Dying 2016; 72(3): 201-233.
*Stevenson M, Achille M, Liben S, Proulx MC, Humbert N, Petti A, Macdonald ME, Cohen SR. Understanding how bereaved parents cope with their grief in order to inform the services provided to them. Qualitative Health Research 2016
Yamaguchi S, Cohen SR, Uza M. The Caring Culture of Japanese family caregivers of people with cancer: Perceptions of and responses to caregiving experiences in Japan.Journal of Family Nursing (Accepted)
*MacKinnon CJ, Smith NG, Henry M, Milman E, Chochinov HM, Körner A, Berish M, Farrace A, Liarikos N, Cohen SR. Reconstructing meaning with others in loss: A feasibility pilot randomized controlled trial of a bereavement group. Death Studies 2015; doi: 10.1080/07481187.2014.958628
Lang A, Toon L, Cohen SR, Stajduhar K, Griffin M, Easty T, Williams A. Client, caregiver, and provider perspectives of safety issues in palliative home care: A mixed method design. Safety in Health2015; 1:3. doi: 10.1186/2056-5917-1-3
*Allen D, Badro V, Denyer Willis L, Macdonald ME, Paré A, Hutchinson T, Barré P, Beauchemin R, Bocti H, Broadbent A, Cohen SR. Fragmented care and whole-person illness: Decision-making for people with chronic, end-stage kidney disease. Chronic Illness 2015; 11(1):44-55. doi: 10.1177/1742395314562974
*Shahidi J, Taghizadeh-Kermani A, Gohari MR, Ghavamnasiri MR, Khoshroo F, Pourali L, Cohen SR. Changes in daily activities of cancer patients after diagnosis: How do Canadian and Iranian patients perceive the change? Iranian Journal of Cancer Prevention. 2014; 7(1):28-34. PMCID: PMC4142954
*MacKinnon CJ, Smith NG, Henry M, Milman E, Berish M, Körner A, Copeland L, Chochinov HM, Cohen SR. Meaning-based group counseling for bereavement: bridging theory with emerging trends in intervention research.Death Studies 2014; 38(3):137-144. doi: 10.1080/07481187.2012.738768.
*Mehta A, *Chan L, Cohen SR. Flying blind: Sources of distress for family caregivers of palliative cancer patients managing pain at home. Journal of Psychosocial Oncology 2014 Jan; 32(1):94-111. doi: 10.1080/07347332.2013.856057
Cohen SR and Sawatzky R. Quality of life assessment in palliative care. In: Textbook of Palliative Medicine and Supportive Care, 2nd Edition, E. Bruera, I. Higginson, C.F. von Gunten, and T. Morita eds. CRC Press, London, England. Distributed by Oxford University Press, New York, N.Y. (2015), pp 361-369.
Cohen SR (2014). McGill Quality of Life Questionnaire. In: Michalos AC (Ed.). Encyclopedia of Quality of Life and Well-Being Research. Springer, Dordrecht, Netherlands: Springer, pp 3883-3889.
Cohen SR (2014). Quality-of-Life in Life-Threatening Illness: Family Carer Version (QOLLTI-F). IN: Michalos AC (Ed.). Encyclopedia of Quality of Life and Well-Being Research. Springer, Dordrecht, Netherlands: Springer, pp 5356-5357.