Amyotrophic Lateral Sclerosis (ALS) Program

Amyotrophic Lateral Sclerosis (ALS) also known as Lou Gehrig’s disease, is a neurodegenerative disease in which progressive muscle weakness leads to paralysis. ALS is a result of the death of motor neurons (nerve cells) in the brain and spinal cord that control voluntary muscle movement. Most people survive less than five years following diagnosis, but a small percentage of patients live for ten years or even longer. So far, there is no cure. About 3,000 Canadian adults have ALS and fewer than one in 10 patients have a family history of the disease.

The Montreal Neurological Institute and Hospital - The Neuro - provides the finest clinical care for ALS patients and their families. The Neuro also has state-of-the-art facilities for carrying out basic and clinical ALS research.

The ALS clinic at The Neuro is considered a model for multidisciplinary clinical care.  The ALS clinical research program develops and tests new ALS therapies in collaboration with the Canadian ALS Clinical Trial Consortium (CALS), and with researchers abroad. The Neuro’s extensive national and international partnerships help to advance research into ALS and to develop effective treatments.  The team adopted a model of care that mobilizes the right time and at an early stage resources such specialized equipment, home care, respite and palliative care that has had a very positive effect on the quality and life expectancy of patients.

Services:

  • Consultation and follow-up for patients diagnosed with ALS or suspected cases of ALS
  • Access to a multidisciplinary professionals – consultations available with respiratory therapy, physiotherapy, occupational therapy, inhalation therapy, specialized nursing, social work, pastoral services, speech language therapy, and nutrition.
  • The program has become a reference center for these patients because of its expertise to use, for the right patient at the right time, tracheostomy, ventilatory assistance at home, BIPAP and gastrostomy.
  • Patients can also participate in clinical trials. Click to learn more.

How to request a consultation:

  • Whether you are a Quebec resident, or a person residing outside of Quebec (rest of Canada), there is a new procedure that must be followed in order to get an appointment when you have a referral from a family doctor (general practitioner). Your referring physician must send a consultation request to the CRDS (Centre de répartition des demandes de services) using a form provided by the CRDS. The CRDS will then seek out an appointment on your behalf and then contact you with the appointment date. Your referring physician can request on the consultation form that you be seen by a specific specialist or hospital, which would be the ALS Clinic of the Montreal Neurological Institute & Hospital. If there is too great a delay, the CRDS may discuss other options (other specialists or institutions) with your physician to ensure that you are seen in a timely manner.

  • Your physician may find the consultation forms here: https://www.santemontreal.qc.ca/professionnels/medecins/crds-centre-de-repartition-des-demandes-de-services-montrealais/

  • Once completed, these forms can be faxed to (514) 732-5121

  • Here is a link to a general FAQ that explains how the CRDS works: https://santemontreal.qc.ca/fileadmin/fichiers/professionnels/medecins/crds/CRDS_FAQ_20102016_EN.pdf

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  • If your referral is coming directly from a specialist, then you can simply fax it to the ALS Clinic at 514-398-1285. Please make sure to include your full contact information and your medical history. 

​Phone number: 514-398-5262

The Montreal Neurological Institute & Hospital is a McGill University research and teaching institute; delivering the highest quality of care to patients, as part of the Neuroscience Mission of the McGill University Health Centre. The Neuro is proud to be a Killam Institution, supported by the Killam Trusts.