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Dementia Education Newsletter

Trusted Resources

Trusted Resources

We have compiled a list below of trusted resources to support people with dementia, their care partners and their family.

Government of Canada
Coronavirus disease (COVID-19): How to care for a person with COVID-19 at home – Advice for caregivers

Government of Québec 
Info-Social 811
Programs and Services for Seniors Guide, 2022 Edition

Government of Québec, Santé Montérégie Portal
Support for seniors and their caregivers

To find your CIUSSS / local CLSC
https://sante.gouv.qc.ca/en/repertoire-ressources/votre-cisss-ciusss/

World Health Organization
Training and support manual for carers of people with dementia

Alzheimer Society of Canada
Alzheimer Societies across Canada continue to provide programs and services in accordance with public health guidelines, many of which are now being offered remotely. Please contact your local Alzheimer Society for updates.

Alzheimer Society of Montreal

Alzheimer Society Toronto
Webinars

Alzheimer Group Inc. (AGI)

Alzheimer's Disease International
PDF icon covid-19_and_dementia_-_difficult_decisions_about_hospital_admission_and_triage.pdf

PDF icon covid-19_and_dementia_-_difficult_decisions_about_hospital_admission_and_triage.pdf

Dementia Advocacy Canada
dementiacanada.com

IGeriCare (McMaster University Health Sciences)
igericare.healthhq.ca/en

MUHC Patient Education Office
Parkinson's Disease: An Introductory Guide

Association des bibliothèques publiques du Québec
Information for caregivers

L’APPUI
Caregiver Support Hotline: 1 855 852-7784
www.lappui.org/en

Caregiver Abuse Screen (CASE)
Questionnaire designed specifically for community use to screen for abuse
Canadian Association of Gerontology. Copyright 1992-2005 University of Toronto Press

Forward with dementia 
A guide to living with dementia

Elder Mistreatment Helpline
www.aideabusaines.ca/en/
1-888-489-2287

Telehealth Intervention Program for Older Adults
A free service aiming to serve isolated and vulnerable older adults/seniors with mental health/cognitive issues and their caregivers. They provide once/twice a week friendly phone calls from trained volunteers to older adults (age 60+)/caregivers, particularly those struggling with mental health/cognitive issues.
www.telehealthmontreal.ca
You can leave a voice mail at 514-485-7811 x25406 and a member of their team will contact you.

Canadian Geriatrics Society COVID-19 Resources
canadiangeriatrics.ca/covid-19-resources/

McGill University Research Centre for Studies in Aging (MCSA)
http://aging.mcgill.ca/

Living with Dementia: My Life, My Goals
A practical guide created by The University of Exeter

Brain Health Food Guide
Developed by Dr. Matthew Parrott in collaboration with members of the Canadian Consortium on Neurodegeneration in Aging

Association Lavalloise des Personnes Aidantes
Tel: 450-686-2572   http://www.aldpa.org/

AVC-Aphasie Laval
Offers activities and services for people who have suffered a stroke, people with aphasia, and their loved ones.
https://www.avcaphasielaval.ca

SAMS (La Société pour les arts en milieux de santé)
SAMS is the largest network of professional musicians presenting custom concerts in health care settings in Quebec. Its mission is to improve the lives of patients and residents in health care institutions through better access to the arts. https://samsante.org/en/

SAM’Chante is a collaboration between AVC-Aphasie Laval and SAMS that offer a weekly choir for people living the Alzheimer's disease and aphasia to participate in.
https://www.avcaphasielaval.ca/chorale

The Ottawa Hospital Research Institute
Decision Aid: During the COVID-19 pandemic, should I go to live elsewhere or stay in my retirement/assisted living home?
decisionaid.ohri.ca/docs/das/COVID-MoveFromLongTermCare.pdf

The Conversation Project
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. Download their free guide, Being Prepared in the Time of COVID-19.
https://theconversationproject.org/

The Community Health and Social Service Network (CHSSN)
The CHSSN supports 30 organizations in offering 75+ Senior Wellness Centres (SWC) across Quebec. SWC’s aim to maintain and improve the health, well-being, and autonomy of English-speaking seniors, to improve their access to and knowledge of health and social services, and to decrease social isolation through purposeful health education and health promotion programming.
https://chssn.org/projects/senior-wellness-centres/

The Cummings Centre
Members benefit from free access to the Virtual Learning Library of over 220 recorded videos covering a wide range of stimulating topics, along with technical support to help access these resources. The annual cost of membership is $25
https://cummingscentre.org

Fondation Émergence
Fondation Émergence aims to educate, inform and raise awareness about the realities of LGBTQ+ people. Their Chosen Family program is designed to support LGBTQ+ caregivers, to educate them about existing services, and to help them develop knowledge that will be useful to them in their role.
https://en.fondationemergence.org/

Hay Doun
Family Support Services Hay Doun is committed to serve the community by providing an effective tool for integration, social education, and support at multiple levels.
https://www.haydoun.ca/en/

Translational Biomarkers in Aging and Dementia (TRIAD)
Learn more about this research study and find out how you can get involved.
https://triad.tnl-mcgill.com

ALS Quebec
The Amyotrophic Lateral Sclerosis Society of Quebec is dedicated to improving the lives of people living with ALS as well as their caregivers.
http://als-quebec.ca/

ALS Clinic at The Montreal Neurological Institute
Tel: 514-398-5262
Clinical Administrative Assistant: Ritsa Argyriou : ritsa.argyriou [at] muhc.mcgill.ca
https://als.clinic.mcgill.ca/

Wellness Together Canada
This collaborative project was created in response to an unprecedented rise in mental health and substance use concerns due to the COVID-19 pandemic, with funding from the Government of Canada. The mission of Wellness Together Canada is to provide high-quality resources to improve the health and wellness of Canadians. 
https://wellnesstogether.ca/en-CA/about

What connects us
An initiative of the Public Health Agency of Canada to improve the quality of life of people living with Alzheimer’s and related disorders and their carers.
https://whatconnectsus-cequinouslie.org/


Driving and Dementia

 

Conversations: Driving with Dementia
Source : Alzheimer Society of Canada

Driving and Dementia Roadmap
Source: Baycrest Centre for Geriatric Care and Sunnybrook Health Sciences Centre

Driving and Dementia Toolkit
Source: The Champlain Dementia Network & the Regional Geriatric Program of Eastern Ontario

Guide: At the Crossroads – conversations about Alzheimer’s disease, dementia and driving
Source: The Hartford Center for Mature Market Excellence®

Dementia and Driving Resource Centre - Realistic scenarios to help families start the conversation about driving.
Source: Alzheimer Association of the US

Driving and dementia, an online video with strategies for caregivers
Source: Alzheimer Society of B.C.

Plan for the road ahead
Source: East Carolina University Older Adult Driver Initiative (ROADI)


Clinical Trials

McGill University Research Center for Studies in Aging (MCSA) - Clinical Research Trials
http://mcsa.ca/index.php/clinical-research-trials-2/

Washington University School of Medicine in St. Louis
https://dian.wustl.edu/our-research/clinical-trial/


Palliative Care Resources


Legal Resources

Advance Medical Directives. Government of Quebec.
https://www.quebec.ca/en/health/health-system-and-services/end-of-life-care/advance-medical-directives/

Curateur public du Québec.
https://www.curateur.gouv.qc.ca/cura/en/index.html

Information on Wills and Mandates. Barreau du Québec.
https://www.barreau.qc.ca/en/wills-mandates/search/

Successions and Wills. Chambre des notaires du Québec.
https://www.cnq.org/en/successions-wills.html

Search the Registers of Testamentary Dispositions and Mandates. Chambre des notaires du Québec.
https://www.cnq.org/en/registers-testamentary-mandates-search.html


Addiction Support Resources

  • The CLSC of your region (acceuil psycho-sociale) sante.gouv.qc.ca/en/repertoire-ressources/votre-cisss-ciusss/
  • Centre de réadaptation en dépendance, Montréal – 514-385-1232
  • Centre de réadaptation en dépendance, Foster – 514-486-1304
  • Nouveau Départ EHN Canada – 1-866-970-5878
  • Maison Jean Lapointe – 514-288-2611
  • Portage – 514-939-0202
  • Alcoholics Anonymous – 514-374-3688
  • Narcotics Anonymous – 514-249-0555

Recommended Reading

The Care of the Older Person

La Maladie d'Alzheimer: Diagnostic, traitement, recherche, prévention

Neglected No More: The Urgent Need to Improve the Lives of Canada’s Elders in the Wake of a Pandemic 


Autism Support Resources


In addition, please find the most recent information on COVID-19 here:


McGill Cares Webcasts 
To help support family caregivers during the COVID-19 crisis, the Dementia Education Program is hosting a free weekly webcast series, McGill Cares. During these candid, 30-minute interviews with leading experts, Claire Webster explores topics related to caring for a loved one with dementia.
https://mcgill.ca/x/4SV


The McGill Community for Lifelong Learning (MCLL) is for mature learners who wish to continue learning simply for the joy of it. Their peer-moderated study groups and lectures cover a wide range of subjects such as the arts, literature, history, and music, to science, philosophy, world culture, and travel. Learn more.


Here are some ideas for activities to keep you occupied during this period of self-isolation.

Virtual Visits Activities, Self-Care and Relaxation

 

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