We have compiled a list of trusted resources to support people with dementia, their caregivers and their family.
Government of Canada
Coronavirus disease (COVID-19): How to care for a person with COVID-19 at home – Advice for caregivers
To find your CIUSSS / local CLSC
World Health Organization
Training and support manual for carers of people with dementia
Alzheimer Society of Canada
Alzheimer Societies across Canada continue to provide programs and services in accordance with public health guidelines, many of which are now being offered remotely. Please contact your local Alzheimer Society for updates.
- Coronavirus (COVID-19): Tips for people with dementia, caregivers and families
- Young onset dementia
- Young onset dementia: Gap Analysis
Alzheimer Society Toronto
Alzheimer's Disease International
Dementia Advocacy Canada
IGeriCare (McMaster University Health Sciences)
MUHC Patient Education Office
Parkinson's Disease: An Introductory Guide
Association des bibliothèques publiques du Québec
Information for caregivers
Caregiver Support Hotline: 1 855 852-7784
Caregiver Abuse Screen (CASE)
Questionnaire designed specifically for community use to screen for abuse
Canadian Association of Gerontology. Copyright 1992-2005 University of Toronto Press
Forward with dementia
A guide to living with dementia
Elder Mistreatment Helpline
Telehealth Intervention Program for Older Adults
A free service aiming to serve isolated and vulnerable older adults/seniors with mental health/cognitive issues and their caregivers. They provide once/twice a week friendly phone calls from trained volunteers to older adults (age 60+)/caregivers, particularly those struggling with mental health/cognitive issues.
You can leave a voice mail at 514-485-7811 x25406 and a member of their team will contact you.
Canadian Geriatrics Society COVID-19 Resources
McGill University Research Centre for Studies in Aging (MCSA)
Plan for the road ahead
An initiative of the East Carolina University Older Adult Driver Initiative (ROADI)
Living with Dementia: My Life, My Goals
A practical guide created by The University of Exeter
Association Lavalloise des Personnes Aidantes
Tel: 450-686-2572 http://www.aldpa.org/
The Ottawa Hospital Research Institute
Decision Aid: During the COVID-19 pandemic, should I go to live elsewhere or stay in my retirement/assisted living home?
The Conversation Project
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. Download their free guide, Being Prepared in the Time of COVID-19.
The Community Health and Social Service Network (CHSSN)
The CHSSN supports 30 organizations in offering 75+ Senior Wellness Centres (SWC) across Quebec. SWC’s aim to maintain and improve the health, well-being, and autonomy of English-speaking seniors, to improve their access to and knowledge of health and social services, and to decrease social isolation through purposeful health education and health promotion programming.
The Cummings Centre
Members benefit from free access to the Virtual Learning Library of over 220 recorded videos covering a wide range of stimulating topics, along with technical support to help access these resources. The annual cost of membership is $25
Fondation Émergence aims to educate, inform and raise awareness about the realities of LGBTQ+ people. Their Chosen Family program is designed to support LGBTQ+ caregivers, to educate them about existing services, and to help them develop knowledge that will be useful to them in their role.
Translational Biomarkers in Aging and Dementia (TRIAD)
Learn more about this research study and find out how you can get involved.
The Amyotrophic Lateral Sclerosis Society of Quebec is dedicated to improving the lives of people living with ALS as well as their caregivers.
ALS Clinic at The Montreal Neurological Institute
Clinical Administrative Assistant: Ritsa Argyriou : ritsa.argyriou [at] muhc.mcgill.ca
Wellness Together Canada
This collaborative project was created in response to an unprecedented rise in mental health and substance use concerns due to the COVID-19 pandemic, with funding from the Government of Canada. The mission of Wellness Together Canada is to provide high-quality resources to improve the health and wellness of Canadians.
What connects us
An initiative of the Public Health Agency of Canada to improve the quality of life of people living with Alzheimer’s and related disorders and their carers.
McGill University Research Center for Studies in Aging (MCSA) - Clinical Research Trials
Washington University School of Medicine in St. Louis
Palliative Care Resources
- McGill Council on Palliative Care
- Canadian Virtual Hospice
- Canadian Hospice Palliative Care Association
- Canadian Grief Alliance
- Advance Care Planning Canada
- Teresa Dellar Palliative Care Residence
Advance Medical Directives. Government of Quebec.
Curateur public du Québec.
Information on Wills and Mandates. Barreau du Québec.
Successions and Wills. Chambre des notaires du Québec.
Search the Registers of Testamentary Dispositions and Mandates. Chambre des notaires du Québec.
Addiction Support Resources
- The CLSC of your region (acceuil psycho-sociale) sante.gouv.qc.ca/en/repertoire-ressources/votre-cisss-ciusss/
- Centre de réadaptation en dépendance, Montréal – 514-385-1232
- Centre de réadaptation en dépendance, Foster – 514-486-1304
- Nouveau Départ EHN Canada – 1-866-970-5878
- Maison Jean Lapointe – 514-288-2611
- Portage – 514-939-0202
- Alcoholics Anonymous – 514-374-3688
- Narcotics Anonymous – 514-249-0555
Autism Support Resources
- Autism Speaks Canada www.autismspeaks.ca/
- Autisme Montréal autisme-montreal.com
- Autism Spectrum Disorder (Government of Canada) www.canada.ca/en/public-health/services/diseases/autism-spectrum-disorder-asd.html
In addition, please find the most recent information on COVID-19 here:
- Santé Montréal
- Santé Québec
- Public Health Agency of Canada (PHAC)
- World Health Organization (WHO)
McGill Cares Webcasts
To help support family caregivers during the COVID-19 crisis, the Dementia Education Program is hosting a free weekly webcast series, McGill Cares. During these candid, 30-minute interviews with leading experts, Claire Webster explores topics related to caring for a loved one with dementia.
The McGill Community for Lifelong Learning (MCLL) is for mature learners who wish to continue learning simply for the joy of it. Their peer-moderated study groups and lectures cover a wide range of subjects such as the arts, literature, history, and music, to science, philosophy, world culture, and travel. Learn more.
Here are some ideas for activities to keep you occupied during this period of self-isolation.