"Come and join the Canadian Organization for Rare Disorders and the Regroupement québécois des maladies orphelines on Friday, June 9th from 12 – 12:30pm for a review of what’s been announced, the...
The European Joint Programme on Rare Diseases (EJP RD) has granted 1.6 million euros in support of an international research collaboration specific to the ultra-rare genetic disease, Schinzel...