Carolyn Ells

Carolyn Ells

RRT, PhD

Carolyn.ells [at] mcgill.ca (Email)

Academic background

Carolyn Ells is an Associate Professor in the Department of Medicine, based at the Biomedical Ethics Unit. She also has appointments as Associate Member of the Division of Experimental Medicine, and the Departments of Family Medicine and Social Studies of Medicine, and Associate Researcher at the Lady Davis Institute for Medical Research. She holds a PhD in Philosophy with a concentration in biomedical ethics from the University of Tennessee, Knoxville.

Research

Dr. Ells’ current research activities are directed to 2 foci:

1)      Patient-centered care theory and its implementation in practice

Her current research collaborations involves this theme. See for example, The Scleroderma Patient-centered Intervention Network (SPIN), Infotility, and selected publications listed below.

One outcome of her collaboration with Dr Matthew Hunt is a Patient Centered Care Ethics Analysis Model for Rehabilitation (PCEAM-R), which is available in English and French. PC_ethics_analysis_model_Rehab_Final v2 Jan_2014.pdf      Modele pour la prise de decision ethique_finalV2 jan 2014.pdf

2)      Research ethics review process and policy

Her publications and policy analyses in the area of research ethics review have been used by policy makers in recommending revisions to normative texts, including the Declaration of Helsinki by the World Medical Association; the Tri-Council Policy Statement for Ethical Conduct for Research Involving Humans by the Social Sciences and Humanities Working Committee of the Panel on Research Ethics; and the American Association for Intellectual and Developmental Disabilities Consent Task Force. See selected publications listed below. 

Teaching

Dr Ells teaches BIOE-680 (Bioethical Theory), a required course in the Specialization in Bioethics Master’s Program, supervises graduate students in that program, and is course director for the Medical Ethics and Health Law courses in McGill’s undergraduate medical program.

Dr Ells co-authored a 6-module on-line research ethics tutorial targeting research ethics board members and support staff within the Quebec health and social services network.

Professional Activities

Dr Ells is Chair of Canada's Interagency Advisory Panel on Research Ethics (PRE), which advises the presidents of Canada’s 3 federal research funding agencies with independent reflection and advice on issues and policy involving ethics of research involving humans human research ethics, consistent with theTri-Council Policy Statement: Ethical Conduct of Research Involving Humans, 2ndedition (TCPS 2).

 

Selected Publications

1) Patient-centered care theory and its implementation in practice

SPIN publications and presentations found here

Infotility publications and presentations found here

Ashley, Florence; Ells, Carolyn. In favour of covering ethically important cosmetic surgeries: facial feminisation surgery for transgender people. AJOB. (Accepted Sept 2018).

Durocher, Evelyne; Elizabeth Anne Kinsella; Barbara E. Gibson; Susan Rappolt; and Carolyn Ells. Engaging older adults in discharge planning: case studies illuminating approaches adopted by family members that promote relational autonomy, Disability and Rehabilitation. (2018) DOI: 10.1080/09638288.2018.1483430 https://www.tandfonline.com/eprint/RJGwRWW7mKhki58vxpQt/full

Stephen Clarke, Carolyn Ells, Brett Thombs, David Clarke. Defining Elements of Patient-centered care for therapeutic relationships: a literature review of common themes. The European Journal for Person Centered Healthcare (EJPCH). 2017;5(3) 362-72.

Durocher E, Kinsella EA, Ells C. & Hunt M.  Contradictions in client-centred discharge planning: Through the lens of relational autonomy. The Scandinavian Journal of Occupational Therapy 2015; Early Online 1-9. DOI: 10.3109/11038128.2015.1017531

Bisaillon L, Ells C. When Doctoring is not About Doctoring: An Ethical Analysis of Practices Associated with Canadian Immigration HIV Testing. Public Health Ethics. (2014) 7 (3): 287-297. First published online: October 27, 2014. DOI: 10.1093/phe/phu036 http://phe.oxfordjournals.org/content/7/3/287.full

Park MM, Zafran H, Stewart J, Salsberg J, Ells C, Rouleau S, Estein O and Valente T. Transforming mental health services: A participatory mixed methods study to promote and evaluate the implementation of recovery-oriented care. Implementation Science 9 (2014), 119. DOI:10.1186/s13012-014-0119-7 http://www.implementationscience.com/content/9/1/119

Hunt MR, Ells C. A Patient-Centered Care Ethics Analysis Model for Rehabilitation, American Journal of Physical Medicine and Rehabilitation, 92:9 (2013), pp. 818-827.

Ells C, Hunt M, Chambers-Evans J. Relational Autonomy as an Essential Component of Patient-Centered Care. IJFAB. 4:2 (2011), 79-101. Relational Autonomy as an Essential Component of Patient-Centered Care [.pdf]

Hunt M, Ells C. Partners Towards Autonomy : Risky Choices and Relational Autonomy in Rehabilitation Care, Disability and Rehabilitation. 33;11 (2011), 961-967. Partners Towards Autonomy [.pdf]

Lotan G, Ells C. Adults with Intellectual and Developmental Disabilities and Participation in Decision Making: Ethical Considerations for Professional–Client Practice, Intellectual and Developmental Disabilities. 48:2 (2010), 112-145. Adults with Intellectual and Developmental Disabilities and Participation in Decision Making [.pdf]

Lemoignan J, Ells C. ALS and Assisted ventilation: How patients decide, Palliative and Supportive Care. 8:2 (2010), 207-213. ALS and Assisted Ventilation [.pdf]

Ells C. Levels of Intervention: Communicating with more precision about planned use of critical interventions. The American Journal of Bioethics. 10:1 (2010), 78-79. Levels of Intervention [.pdf]

2)   Research ethics review process and policy

Calvert, Melanie; Kyte, Derek; Mercieca-Bebber, Rebecca; Slade, Anita; Chan, An-Wen; King, Madeleine T. King; and the SPIRIT-PRO Group. Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols The SPIRIT-PRO Extension. JAMA. 2018;319(5):483-494. DOI:10.1001/jama.2017.21903

Rahimzadeh V, Bartlett G, Longo C, Crimi L, Macdonald ME, Jabado N, Ells C. Promoting an ethics of engagement in pediatric palliative care research. BMC Palliative Care 2015; 14:50; Online Oct 16, 2015. DOI: 10.1186/s12904-015-0048-5

Ells C, Thombs BD. The ethics of how to manage incidental findings (Invited Commentary) CMAJ; Early Release Online, March 31, 2014, 1-2. CMAJ June 10, 2014 vol. 186 no. 9 First published March 31, 2014. DOI: 10.1503/cmaj.140136  http://www.cmaj.ca/content/186/9/655.full?sid=42236ec3-6a72-4057-bfff-4988652a2fd0

Thombs BD, Ells C, Black L. Patient-Reported Outcome Alert Monitoring. (Letter to the Editor). JAMA, 311:4 (2014), 420.

Ells C. Communicating Qualitative Research Study Designs to Research Ethics Review Boards, The Qualitative Report. 16: 3 (2011), 881-891. Communicating Qualitative Research Study Design [.pdf]

Ells C. There's No Going Outside the Lines: Ethical Considerations in the Conduct of Clinical Trials. Chapter 4 In: What You Need to Know to Conduct a Clinical Trial and How to Avoid Common Pitfalls, Craig Leonardi & Kim Papp (Program Chairpersons), an on-line educational program jointly sponsored by the Postgraduate Institute for Medicine, BioCentric, Inc., and the International Psoriasis Council, June 1, 2009. http://www.psoriasiscouncil.org/resources/publications/clinicaltiralshandbook.htm

Goodyear MDE, Eckenwiler LA, Ells C. Fresh thinking about the Declaration of Helsinki: A comprehensive approach to ethical research, BMJ (2008) 337:a2128. (Commissioned editorial) Fresh thinking about the Declaration of Helsinki [.pdf]

Eckenwiler LA, Ells C, Feinholz D, Schonfeld T. Hopes for Helsinki: reconsidering "vulnerability", Journal of Medical Ethics. 34:10 (2008), 765-766. Hopes for Helsinki [.pdf]

Eckenwiler LA, Feinholz D, Ells C, Schonfeld T. "The Declaration of Helsinki through a Feminist Lens," The International Journal of Feminist Approaches to Bioethics. 1:1 (2008), 161-177. The Declaration of Helsinki through a Feminist Lens [.pdf]

Ells C, Gutfreund S. "Myths about Qualitative Research and the Tri-Council Policy Statement," The Canadian Journal of Sociology. 31:3 (2006), 361-373. Myths about Qualitative Research and the Tri-Council [.pdf]

 

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