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OMERACT Flare Working Group

Project Information
Description: 

The Outcome Measures in Rheumatology (OMERACT) group is an international network of rheumatology scientists, clinicians, and patients who work together with the common goal of improving outcome measurement across rheumatologic diseases. The OMERACT RA Flare Group was established in 2006 to ultimately to define and rigorously develop a consensus-based new measure for use around the world to assess flare in RA—an important gap that impedes current research. The OMERACT RA Flare Group includes researchers, clinicians, statisticians and patients from Europe, Canada, USA, and Australia. Currently, an international Project Steering Committee of 10 experts in RA lead the working group. I am a member of the Steering Committee. An initial goal was to achieve consensus among an international group RA patients and HCPs of key features of RA flares. Current goals are to validate the Flare Questionnaire we developed.

Project Date: 
2010-10-01 - 2022-10-05
Type of Project: 
Research
Research Area: 
Health Research
Sub-Research Area: 
Musculoskeletal health and arthritis

Locations

United States
United Kingdom
Australia
Germany
Denmark

McGill University Project Leader Information

Project Leader: 

Susan Bartlett

Primary Position

Faculty: 
Faculty of Medicine
Department: 
Medicine
Institute: 
McGill University Health Centre (MUHC)
Position/Appointment: 
Associate Professor
Research Interests: 
A major focus is the influence on psychosocial factors and health behaviors (adherence to prescribed treatments, diet, physical activity, yoga) on health outcomes across chronic diseases such as asthma, COPD and arthritis. Other interests include plabeco response and enhancing communication between health care providers and patients.
Selected Publications: 

 

Bartlett SJ, Ling SM, Mayo N, Scott S, Bingham CO 3rd. Identifying common trajectories of joint space narrowing over two years in knee Osteoarthritis. Arthritis Care Res (Hoboken). [Epub ahead of print] PubMed PMID: 21905250; 8 Sep 2011
Bingham CO 3rd, Alten R, Bartlett SJ, Bykerk VP, Brooks PM, Choy E, Christensen R, Furst DE, Hewlett SE, Leong A, May JE, Montie P, Pohl C, Sanderson TC, Strand V, Woodworth TG; OMERACT RA Flare Definition Working Group. Identifying preliminary domains to detect and measure rheumatoid arthritis flares: report of the OMERACT 10 RA Flare Workshop. J Rheumatol. 38(8):1751-8. PubMed PMID: 21807797; Aug 2011
Hewlett S, Sanderson T, May J, Alten R, Bingham CO 3rd, Cross M, March L, Pohl C, Woodworth T, Bartlett SJ. 'I'm hurting, I want to kill myself': rheumatoid arthritis flare is more than a high joint count--an international patient perspective on flare where medical help is sought. Rheumatology (Oxford). [Epub ahead of print] PubMed PMID: 21565901; 12 May 2011
McCauley J, Haaz S, Tarpley MJ, Koenig HG, Bartlett SJ. A randomized controlled trial to assess effectiveness of a spiritually-based intervention to help chronically ill adults. Int J Psychiatry Med. 41(1):91-105. PubMed PMID: 21495524; 2011
Clerisme-Beaty EM, Bartlett SJ, Teague WG, Lima J, Irvin CG, Cohen R, Castro M, Wise RA, Rand CS. The Madison Avenue effect: how drug presentation style influences adherence and outcome in patients with asthma. J Allergy Clin Immunol. 127(2):406-11. PubMed PMID: 21281871; PubMed Central PMCID: PMC3050545; Feb 2011

 

Role: 
Other
Other Role: 
Steering Committee Member

Non-McGill Partners

Partner: 

Clifton Bingham

Country: 
United States
University/Organization: 
Johns Hopkins University
Role: 
Other
Other Role: 
OMERACT Flare Group Leader