PROMIS-Canada

What is PROMIS?

The Patient Reported Outcomes Measurement Information System (PROMIS®) is a set of person-centered measures to assess how people feel and function. PROMIS uses advances in information technology, psychometrics, and qualitative, cognitive, and health survey research to measure patient reported outcomes such as pain, fatigue, physical function, emotional distress, and participation that have a major impact on quality-of-life across chronic diseases. Self reported and parent-reported measures in adults and children are available.

To learn more about PROMIS and why to use it, visit HealthMeasures.  Try a PROMIS Computer Adaptive Test (CAT) here.

PROMIS tools measure how adults and children feel and function. Try a PROMIS Computer Adaptive Test here.

 


What’s New in PROMIS
 

More French translations of PROMIS adult and pediatric measures are now available (see here).

PROMIS is expanding instruments to include early childhood. Learn more here.

Learn about the Annual PROMIS Health Organization (PHO) Scientific Conferences, Webinars, 
Upcoming Workshops, and other PROMIS events here.

Follow PROMIS on twitter here and here.
 

 

To Obtain and Administer PROMIS Measures in Canada

English versions are available here.

French versions of many measures are available by contacting us directly.  To request any other language, please contact translations [at] HealthMeasures.net.  Note that French and other available languages are subject to a distribution fee.

Please note that PROMIS measures cannot be translated without permission. Be sure read the Terms and Conditions of Use here for more information.

 

Interested in contributing to PROMIS? We are looking for researchers who want to participate in:

  • translation, validation and adaptation of PROMIS into French for use in Canada
  • validation in different patient groups
  • implementation of PROMIS across care settings
  • development of additional item banks

For information on availability and use of French translations of PROMIS, please contact susan.bartlett [at] mcgill.ca or sara.ahmed [at] mcgill.ca.

PROMIS International includes activities conducted by US PROMIS researchers and international partners. Drs. Susan Bartlett and Sara Ahmed at McGill University are leaders of the PROMIS Canada initiative and are members of the PROMIS International Steering Committee and PROMIS Health Organization Board of Directors.

 

PROMIS Resources

Information about the PROMIS family of measures(PROMIS, Neuro-QOL, ASCQ-ME, NIH Toolbox) can be found here.

Information about scoring and interpreting PROMIS is available here.

The PROsetta Stone initiative has established links between PROMIS scores and legacy measures for depression, anxiety, physical function, pain, fatigue, global here and others. Linking tables are available here.

Learn more about PROMIS measurement science and PROMIS validation – can be found here and here.

Programs and sessions from past PROMIS Health Organization scientific meetings, workshops, and upcoming events can be found here.

Learn more about how to select patient reported outcomes (PRO) here and here.

For more on data collection tools you can use with PROMIS, click here.

For a list of PROMIS publications, click here.

Read The User’s Guide to Implementing Patient-Reported Outcomes in Clinical Practice developed by the International Society of Quality of Life (ISOQOL) here.

Read about Patient-Reported Outcomes in Performance Measurement here.

 

Contact Us

Canada PRO Initiative
McGill University
Division of Clinical Epidemiology
Centre for Outcomes Research and Evaluation
5252 de Maisonneuve, #3D.57
Montreal, Quebec H4A 3S5

susan.bartlett [at] mcgill.ca
sara.ahmed [at] mcgill.ca
translations [at] HealthMeasures.net

*HealthMeasures is the official information and distribution center for PROMIS, Neuro-QoL™, NIH Toolbox®, and ASCQ-Me®, which were developed and evaluated with National Institutes of Health (NIH) funding. PROMIS, Patient-Reported Outcomes Measurement Information System, and the PROMIS logo are marks owned by the U. S. Department of Health and Human Services.

 

Back to top